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Equality Act/ struggling with my mental health.
Hi everybody It’s complicated my story, sorry I can’t remember if I put a post on about what happened to me at A&E last year but now it’s about health issues and hospital attitude. I have to have infusions due to my health condition now, I had my first one on Monday after the hospital told me it was at a different hospital…
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Right to counselling and ongoing case management services as an autistic adult
I have diagnosed autism and bipolar 2 and have a complex back story - having my diagnosis withheld from me and having to struggle, disrespect shown towards me by my own family because of my autism making for complex and unhealthy dynamic where I am always seen as the problem culminating in a schism in the family and…
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SpinalStenosis
Who can I go to after pain killers, exercise, steroid injections ,tens, disability aids and loads of GP consultations and GP's advice to go toA+E if symptoms get worse? Excruciating pain and no relief from anyone and it's been since August and it's now March.Should I go to Private medicine? This is now stopping me from any…
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Flaw in the Law - Mental Health
There appears to be an awful lot of legislation pertaining to Mental Health, on particular regarding negligence and discrimination, however, in trying to pursue matters all I repeatedly come across is:- Mental Health is such a niche area and we do not have specialists that would be able to help?????????????????????? Mental…
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The Government
Are they going to tighten their grip around our necks??..I,for one,am very worried after hearing of today's developments.
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advocacy services question
Does anyone know of any care advocacy services that deal with cognitively aged appropriate adults?
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A poem called Shine a light
A poem called Shine a light The month of cerebral palsy awareness. We shine the spotlight on the incredible things that people with cerebral palsy are doing. No more are going to be seen as weak people. Once we put our minds to something we are relentless in our pursuit of our goals We have all defined the odds now we are…
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Phone call received about my Pip payment reward review submission
Hi, I submitted the forms in September 2021 n had a short, 8 minute call from a lovely lady. I was asked if any changes since sending form as was told sometime will be completed and sent on. I'm not sure as I cannot remember. What would be completed n sent on? Also is it standard practice for them to just call up…
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Alternative Fuel Bill Support
For anyone that lives in a Park Home, etc. you can now apply for this online here: https://www.gov.uk/apply-alternative-fuel-bill-support-if-not-automaticPlease note you will need proof that you've spent £200 since September 2022 on your alternative fuel as well as your bank details. There's also a helpline: telephone:…
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Anyone had success complaining about A&E care?
Hi everyone I was just wondering if anyone had any success about complaining about hospital care in A&E ? It’s a long story I don’t want to go into it, but what did you do? Did Pals help? Did the hospital take you seriously? Did you go to the ombudsman? Thank you Jan
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The truth about Marfan syndrome
“People tend to have a very narrow
view of how this condition presents itself” – The truth about Marfan syndrome. This
February has been a special month for numerous reasons – Valentine’s Day,
Pancake Day, and the arrival of brighter nights. But you might not know that February is
important for another reason too, as the…
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Contacting companies as a non-speaker
Does anyone else have difficulty contacting certain companies
when speech is limited I am currently trying to contact Premier Inn to modify a
room booking – booked for 2 weeks time However – their hotels do not have individual email
addresses – the whole “CONTACT US” is down to a central phone number. I have two email…
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What a strange Title.
I just went to research something on the PIP's enquiry help line and was asked this? Hello thereSo we give the right advice for you, can you answer which Nation you're from? England Scotland N.Ireland Wales / Cymru Nation? clicked on Wales and got nothing? Are we ( Wales ) a Nation? I thought that all enquiries went…
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Long term medical malpractice/negligence
Hi everyone, I was wondering if I could get some advice regarding a case of medical malpractice/negligence. I am 39, female, autistic, and with communication difficulties. At the age of about ten, I was prescribed antibiotics for about seven years, which left me with gut issues. I was subsequently prescribed laxatives for…
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Join us in asking the government to introduce discounted energy bills for older and disabled people
Older and disabled people shouldn't have to unfairly pay the price for needing more energy. Join Scope and Age UK in asking the government to introduce discounted energy bills for those who need it most. Are you with us? Sign our open letter.
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Cafe Menu access - the screens
Can I ask these cafe menu screens- are they making lives difficult? I struggle often, I order in the app in-store so I get what I want if it’s hard to say. Can I ask is this something that’s a problem or is it just me. As I think more thought needs looking into this as getting a large print menu takes time. As virtually…
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Hi, my name is PeterCricket! I want to provide some guidelines on accessible facilities
I am chair of a Cricket League in the West Midlands and am concerned that many of the clubs who play in the League do not have adequate facilities for members and guests who have disabilities. I want to provide some guidelines for them. It is very difficult to find out what they must have and what would be good to have.…
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Local Elections 2023
Aware that this year's local elections in May are becoming ever more imminent, it gave me cause to consider how those with health conditions and disabilities are still very much under-represented, despite this being the 3rd decade of the 21st century. With this in mind, would anyone within the scope community know whether…
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About employment
I am currently in employment and I have been told because of my Performance they are No longer going to continue my employment.Now they haven't even taken into count that I have a disability which will take me longer to meet there Target. I just Don't know how I am going to Manage Not being in any kind of work.
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Car breakdown
Hi I was wondering if any body else has had any problems with the RAC Yes as a full-time wheelchair user with an autistic son along with my wife we were left for 6 hours in -2 degrees at a side of a dual carriage way and then I was towed on a dangerous trailer and then we were left for another 4 hours waiting for a taxi…
