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Personal assistants. Direct payments from local council
My 29 year old daughter was recently assessed by a social worker who has recommended she has a PA for 6 hours a week to help her with independence skills and companionship. I have received a prepayment card but no information or support about how to proceed. Help!
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Council housing and autistic child
My family and I have recently been served a Section 21 by our landlord as they want to sell the property. Due to our financial situation we cannot afford a private rented property anymore, we are currently in the process of going homeless and have approached the council for social housing which has been accepted. They have…
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Hi, my name is Pippy2000!
I live with my husband and his profoundly disabled son. He's 18, large, peg fed, unable to walk, wears a nappy and cannot speak/understand language. My husband's mum lives in Ireland. He hasn't seen her for ages and has wondered if I could look after him on my own for a long weekend in the summer. Am I being heartless by…
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Supported Living search for our young adult in Cheshire
Looking for advice, signposting & ideally provision places for our soon to be 19 lad with special needs; ASC, ADHD, PDA, ARFID etc... Support & availability of anywhere seems to be lacking. I've been advised to contact Scope, Mencap & the Priory group, but anywhere/ anyone else to try would be a great help @highlydaunting!!
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need respite care
please could i have a list of qualified people for my two sons with autisum, i would need two people has they have different needs. they both have 10hrs during the week and 20hours a week school holidays, they would be paid by direct payment. they would have to be fit and strong.
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Please help me with 19 year old daughter, challenging and violent behaviour
Hi all. This is my first post here. I have a 19 year old daughter with a chromosome disorder , autism, learning difficulties and challenging behaviour. She has gradually getting more and more violent towards me and I’m not sure how much longer I can cope. I always thought I would always have her at home with me but now I’m…
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I am a sister of two sisters with the same mother, but one younger sister won't listen to me or mum
The issue I am having with my older sister is still on going, and I keep telling my mother that she keeps making me angry for not flushing the toilets. I keep telling my mum how annoyed I was with my older sister for not flushing toilets, not putting feminine products in the bin, and leaving wrappers just lying around in…
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Child with no school place
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Hi, what is the name of the document to make decisions on behalf of someone?
I have a 16 year old disabled grandson.can someone please tell me the name of the document his parents need to have to make decisions on his behalf.as he is not capable to make any himself thank you
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5yo needs a PEG, help explaining
Hi my 5yo son (ASD, PDA, ARFID, etc!) needs a PEG because he refuses oral medication. His digestive system is defective in some way, plus interroceptive issues mean he isn’t toilet trained at all and cannot pass BM without daily laxatives. He has severe anxiety. He’s been into hospital for manual disimpaction and we are…
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Hi, my name is SPC! information on to get my child (14) tested for ADHD
Hi-I am looking for information on to get my child (14) tested for ADHD - any advice? Many thanks
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School exclusion
Hello all y name is joy a mother and a carer of a 14 year old son living with autism and learning difficulties. Iam searching for answers to our many challenges of school placement so I came across this online community and I joined . thank you for welcoming me.
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Help
My sister gave birth 2 weeks ago and wouldn’t let anyone know the name of the baby until it was born which is fine. But, she posted the name on Facebook with a picture of the baby before telling me, am I right to be annoyed as we are a close family, I thought.
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Advice on support for 2 boys (ASD)
Hi there, I’m just wondering what support I could look into getting to get some respite. Is there any such thing!? I have a 12 year old at home full time with long covid for past 15 months (likely ASD) and a 10 year old ASD. Both require significant amounts of energy and emotional / time input to maintain mental health. My…
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Looking for contact with families of autistic children who are in residential care
Hi, My son is 11 years old and moved into his second care placement in December last year. He has severe autism and is non verbal. He is amazingly clever and a beautiful soul but after trying everything, including a huge home care package I came to the realisation that I am unable to care for him, my two other younger…
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Inheriting a pension
Does anyone have experience of applying as a dependent for the purpose of inheriting a parent’s private pension? I’m especially interested in those with autism and/or mental health issues. My parents both have private pensions (Police and NHS) which state that an “adult dependent child” may inherit 1/4 of the pension when…
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Hi I'm James and I am completely lost
Hey all Firstly I'd like to thank Scope. I have never used your website or services before, but due to your tireless charity work and campainging through the years, I knew exactly where to come when I needed somewhere to look for support and advice. You guys were like a beacon in a blizzard. Anyway, I have a lovely son,…
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Could my child get disability badge or queue jumping card?
If your child has hyper mobility and flat foot syndrome and suffers with real bad leg pain. Can they get disability badge or queue jumping card.
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Meeting other children with CP
Hello everyone. My daughter is 8yrs with mild right-sided Hemiplegia. She also has other diagnoses which impact her learning at school. She is struggling with not knowing any other children with CP and feels very isolated because of this. We would love to meet similar families who may be interested? We live in Central…
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Excercise on Referral
Hi I came across excercise referral, which the mental health team made a referral for me, and was wondering if anyone had any experience of this? What kind of excercise programs do you do? How long for each week? Obviously each program would be slightly different but was just wondering if this has helped anyone become more…
