Non epileptic seizures in children — Scope | Disability forum
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Non epileptic seizures in children

Lisand70
Lisand70 Community member Posts: 2 Listener
My 15yr old daughter has epilepsy but controlled by medication. She now also has NES but they only occur at school.

If you have a child with this, what support do you get from their school.

thanks in anticipation of your reply 

Lisand70

Comments

  • woodbine
    woodbine Community member Posts: 11,331 Disability Gamechanger
    https://www.epilepsy.org.uk

    the link above might be a useful source of info and advice.

    @Lisand70  welcome to scope
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    Support should be based on your child's individual needs @Lisand70. Is there anything, in particular, about the school which triggers the seizures or your daughter struggles with in school before/during/after a seizure? We are here for you if you would like to talk this through further with us  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Lisand70
    Lisand70 Community member Posts: 2 Listener
    We as yet haven’t found the triggers, we are trying moving her this week to different classrooms to see if this changes anything. Will let you know how we get on
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    Are the school supporting you with this @Lisand70? Hopefully, there will be a more settling classroom  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • johndtay
    johndtay Community member Posts: 25 Connected
    if available in your area, getting a statement of special neds help get things moving further along with the problems? 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    Just to clarify @johndtay, statements were replaced with education, health and care plans (EHCPs). Though I thank you for trying to help  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

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