I am looking for advice on where I can receive overnight respite support or if anyone in the community has got any experience of this or can point me into a general direction…
My son, who is 6, has severe Autism. He needs support in almost all
aspects of his life. He also has a sleep disorder, which means no two nights will be the same and sleep is usually poor for him and myself.
He has been prescribed Melatonin which can sometimes help with getting him to sleep, but he tends to sleep for under 5 hours and then is awake, sometimes for the rest of the day. As a single mother, this becomes exhausting very quickly.
My son’s father is inconsistent and unreliable with his support. It tends to require me providing funds in order for him to engage with his responsibilities, which I cannot afford to do. I have attempted to discuss my needs and concerns with my son’s dad several times and for one reason or another, it does not change the situation. Unfortunately,I do not have family or friends who can help in this situation.
I had previously requested a Carers Assessment from my local authority. I was allocated a Social Worker who visited my home and I relayed the information I have outlined above. The suggestion was an activity club which is 3 hours per week. I was told that the assessment for alternative help, if I was even “successful”, would be approximately 3-4 hours with a Personal Assistant who would take my son out. He would not be able to do activity club in addition to this - it was one or the other. He seems to do ok with the activity club, but it does not begin to put a dent in the sleep exhaustion I am feeling. I tend to use the time to get shopping or undergo tasks that I am unable to do while my son is in my care.
Ultimately, I need time to rest and sleep for a longer period of time- overnight. It is particularly evident how much of a struggle this is becoming during the holidays.
My mental health is becoming under strain and my health is starting to suffer. I am concerned that continuing in this way, my health will fail and will be unable to care for my son?
