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How can we get our complaints taken seriously?
Hi, I am mum to a 30yr old young man with Autism & challenging behaviour. My son lives in supported living with 24/7 support. Sadly my son has been left a broken young man following physical, mental & financial abuse by his previous care provider. We raised 6 safeguardings in 4 months, involved CQC, commissioners, the…
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I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD
Hi i have Fibromyalgia, Osteoarthritis, in my knees, and back. I am a single mum to my daughter she lives with her boyfriend and they just had a beautiful baby boy, I'm a first time nanny. I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD, i am his full time carer 24/7, no…
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Family with autism and dyslexia
Does anyone struggle to cope with family member who has autism My husband has autism and my 14 year old daughter has dyspraxia some times I feel I'm all on my own my mum say I'm very strong sometime I don't feel it as iam a carer for them both and have bipolar my self Anyone understand how I feel it would nice to know iam…
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16 yr old with moderate depression - I want to figure some ways forward
Hello, My son has a disability and is nearly 16. He's been assessed by CAMHs today, and confirmed moderate depression. It's his GCSE year and he's so far not started back at school. I'm joining SCOPE discussion to try and figure some ways forward.
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How do I support my daughter after college was too much?
I'm so worried about my daughter she had a diagnosis of autism after being kicked out of school and getting sent to a pupils refural unit she left there and went to an art college where she had a support worker she has a talent for making things with clay she has a lot of sensory needs and had her hoood up all day long in…
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New Member-OT student/CP caregiver
Hello everyone! I am a caregiver to a girl with CP and I am also an occupational therapy student. I joined this forum to be a part of the community, share experiences, and ask questions for an assignment in my class but also for myself to be better and learn! I hope we can have great conversations and appreciate any advice…
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Has anyone dealt with not being diagnosed for this long? My daughter is nearly 10
Hi all I am new to all this even though i have been dealing with all this for 6 years. My daughter is nearly 10 and has a physical disability but it is still undiagnosed. It has been very hard and very frustrating as i am struggling to get any help with her financially as she doesnt have a diagnosis. We have been refused…
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I need some advice with my 9yr old son with ASD
I was wondering if anyone can advise me, my son was diagnosed with ASD last year, he was given sleeping tablets to help him shut off at night, he is 9 now and is becoming very clingy to our home, he hates to go out, would stay at home 24/7 if he could and is constantly complaining if we ever go anywhere, it’s causing chaos…
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Neighbour from hell
[Edited by moderator] a senior manager at Lloyds Bank HQ Bristol a record of his nefarious
activities, each reported to Lloyds Bank and the Police where applicable. View ‘[Edited by moderator]’ and ‘Banker Behaving Badly’ on
YouTube and/or Google and
witness his despicable conduct, (featured in a TV documentary to be…
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When your children are young carers
This week we are talking about Young Carers, if you are interested in finding out more about the support available in your area, take a look at Carers Trust. I blog about my illness at So Bad Ass talking about life with chronic illness, IBD, an ostomy and invisible impairments. I was diagnosed with Ulcerative Colitis in…
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Does my 3 year old need a wheelchair???
my son has suspected Cerebral Palsy and is awaiting MRI for confirmation... he is almost 3 years old and can only manage a few yards before wanting a carry. He is just too heavy and we are currently taking his push chair every where but he’s getting to big for it... my question is will he be entitled to a wheelchair now or…
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Carers allowance
Hi, on Friday I had a call from DWP that i have been overpaid carers allowance. I have a joint UC claim with my husband and I am his carer. For the past 18 months Ive been paid weekly the Carers allowance but then been taken from our UC award, £for £... When we receive the final amount of how much we have been overpaid by…
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Help make our SEN support and ECHP info easier to find!
We're currently testing how best to arrange our SEN support and Education, Care and Health Plans content on the advice and information section of our website. We'd really appreciate your help completing the quick tasks here. Please remember there are no wrong answers!
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Help with Petrol??
Hi guys Just wondered whether anybody knew of any petrol allowances for carers. My son cannot walk so a car is essential. He has so many appointments all over London, plus we live far from school. Can carers get help with their petrol costs? Thank you! :)
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20 month old diagnosed with PVL and diplegic CP. Any other experiences out there?
HI ALL I'm new to the group. We have a wonderful daughter who is 20 months old and has recently been diagnosed with PVL and diplegic CP. She was born at 35 weeks and was a tricky labour with failed forceps and emergency ceaserean. Had a short time of ventilation which I'm guessing this is what caused the PVL? That's how I…
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how can I help my son with scoliosis?
Hi, my name is Rachel and l am mum to 3 disabled boys, 2 with mental health issues and 1 with scoliosis and some mental health issues. I have 7 children in total, 2 girls (31 & 25) and 5 boys (15,21,22,26 and 28). I also have 2 grandchildren, grand daughter aged 1 and a grandson who has just turned 6 months. I myself have…
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Support for ADHD
Hi there. My five year old has recently been diagnosed with ADHD and ODD and is currently awaiting and ASD assessment (I suspect PDA but I know they don't diagnose in my area). He also suffers from anxiety and has several ticks, vocal and physical. He's on ADHD medication. We're really struggling at the moment with the…
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6 year old Great Grandson
My Great Grandson has had difficulties possibly since birth. He has just turned 6 and attends an ordinary state school. He is in the process of assessment but this hasn’t been completed as yet. It has been pointed by an educationlal psychologist out that he needs additional support in school but this requires funding that…
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Need help!!
hiya, so my son who has ADHD finds it hard to regulate his emotions when angry or upset will lash out and destroy my home. Is there any way he can see an OT who can help with ways around this and help him use some sort of tool in this case?
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Struggling with child who enjoys being poorly
Hi there, Anyone have a child with chronic illness who enjoys being poorly because it means they get you to themselves??? Struggle getting her off treatment as she gets upset if recovering as it means a return to normal life! Anyone?
