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Support for my son 24 years old has autism

raxaraxa Member Posts: 37 Connected
edited June 2019 in Parents and carers
Hello I am Raxa my is 24 years old has autism with learning difficulties, he doesn't have any interest in going out, he has carers who comes home end spend time with him, his not willing to do anything travel tranning, bit of house work, i am in the middle between them two, my son is saying that the support worker asking him to do so many things at once , my son finds it hard to cope .  Support work told me that she can't carry on like this, if my son does not cooperate then she might leave.  Could you please please help me, i know my son is very rigid and stubborn all he wants to do is stay in his room with his gagets.  I feel helpless please advise how motivat him.

His demands are to by him S10 Samsung galaxy phone which £900, 

Replies

  • Antonia_ScopeAntonia_Scope Member Posts: 1,783 Pioneering
    Hi @raxa welcome to the community. How are you doing today?

    Thank you for sharing this with us, I am sorry to hear what you have been going through.  I have you had a talk with the support worker and your son and see if there's a task he would be willing to do? If it's possible maybe starting off with one task as a goal for the week/s and maybe in return a fun activity could be planned.

    I'll tag in @SparkleSheffieldAutismAdvisors and see if they have any suggestions.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @raxa, thank you for sharing this with us. Have you looked at the National Autistic Society or Mencap? They may be able to provide specialised advice for your son. Is there a set plan for his support workers? It may be worth going through with them again about your son's needs so they better understand him. I hope you're able to find something that works and I hope the community can allow you to be surrounded by like-minded people. Please do be in touch if there is anything else we can do :)
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    Scope

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  • raxaraxa Member Posts: 37 Connected
    Thank you very much for your support it means a lot to me.
    raxa
  • raxaraxa Member Posts: 37 Connected
    Hi Please advise My son suffer from absence epilepsy, his been on this drugs for 13 years, since then he is loosing weight, when i went to the neurologist they lower the medication, since then his been having hallucinations visual images eg. seeing  monster touching, tickling me, his feeling scared at night to go sleep this has been having episode, i have been to my GP he has referred us to bentley house in harrow they refered us to kingswood centre, his all ready under Psychosexual series therapiest they have refused as well i really need advise and support as his having restless night has autisum with learning difficulties.
  • Antonia_ScopeAntonia_Scope Member Posts: 1,783 Pioneering
    Hi @raxa I am sorry to hear this, this must not be easy for you and your son. Have you informed the Neurologist about the effect it's had on your son? 

    Sorry if i have misread what you have said,  did the Therapist refuse to see him? 
  • raxaraxa Member Posts: 37 Connected
    Thank you very much for your advise, Kingswood central only see adult who moderate learning diffculties, therefore my son doesn't fall into there categories.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,662 Disability Gamechanger
    Hi @raxa, thanks for this. How long have you been waiting for bentley house? I hope the waiting times aren't too long!
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    Scope

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  • dolfrogdolfrog Member Posts: 434 Pioneering
    Hi @raxa
    From what you are describing it sounds like the so called Carer has no idea how to care and support your son, only having a very limited understanding of the complexity of living with neurodiverse issues. Such is the lack of training of so called support professional  here in the UK regarding these types of issues
    Understanding your sons interests and working with him at his pace is the only way to improve his self worth. 
  • April2018momApril2018mom Member - under moderation Posts: 2,882 Member - under moderation
    Have you contacted the NAS? They might be better equipped to help you access resources and services too. Give them a call tomorrow, there should be a office number on their website you can call or email them. 
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