-
Degenerative Disc Arthritis Facet Joints
I just wanted to ask from others who have this condition if they also have either arthritis of their facet joints, nerve impingement or compression, or radiculopathy? I understand DDD refers to the condition of the actual discs, but do the other conditions result from different stages of decline? Is it at a certain stage…
-
Advice about a friend with MS
Hi I hope I can get some advice here from people with more knowledge and experience than myself. My friend is in her early sixties with MS and has taken to her bed. She's sleeping (according to her) 23 and a half hours a day because she says she's happiest when she's unconscious. She's aided in this by a steady intake of…
-
Visually impaired and depression
I’ve been visually impaired for nearly a year, I get out and about using a cane, but I get so low as so many people just walk in front of me without seeing my disability and I get so embarrassed as I say in visually impaired and please be careful and give me some space to get around and then I get so many dirty looks and…
-
Visual Impaired Members
Hi Everyone, I was wondering if there were any visually impaired members who would like to chat? Thanks, CSn01
-
Help for pre-diagnosis autism
hello, I’m pretty sure I’m autistic, I have had the first stage assessment and waiting for the second stage adult assessment. I’m in need of some counselling but there doesn’t seem to be any for people unless they’ve had their diagnosis. I need a counsellor who understands autistic traits. Does anyone know of such a…
-
Shoulder op - anyone ?
It looks as if I will have to have an op on my shoulder (s?) - due to having non-improving rotator cuff !!They have to grind bone away, to make the ball joint smoothAnyone had this done ?Was it successful ?I am concerned about such things as "How do I wipe my bum, after the toilet" ?
-
Think my crohns is flaring again
I have pretty bad crohns disease (having stoma fitted and mutiple operations) and I'm worried that my crohns is flaring again. I have no appitite and struggling to eat the most simple things. I have only been able to manage a pasty at lunch and thats the only thing I have managed to eat all day. I also feel pretty unwell…
-
Discouraged about getting seen.
I am not sure where to post. But I don’t know what to do about this and am wondering if anyone has any advice. I have been seen now by 8 different neurologists. The last, was a Movement Specialist who diagnosed me with FND and is forwarding me on to a Functional Neurologist. But it has been almost 2 months and I STILL have…
-
Spinal Stenosis surgery
Hi everyone, I was wondering, has anyone here had surgery for spinal stenosis? How was your experience? Also wondering if anyone has spinal stenosis and adult onset Hydrocephalus? I have both. I was diagnosed with Hydrocephalus in 2016 aged 43 and subsequently have had 5 brain surgeries plus 3 emergency abdominal…
-
verbal dyspraxia
My Grandson has been diagnosed with verbal dyspraxia. He is 6 and cant speak in sentences. Will he ever talk properley
-
Hi, my name is PurpleRaven70! Worsening symptoms of fibromyalgia and possible stenosis, any advice?
Hi everyone....reaching out....first bad experience with GP waiting for tests to diagnose ongoing symptoms which are getting worse 18 months ago my walking began to deteriorate and I have gone from an active n on the go person to being almost housebound....I venture out wi family.... symptoms worsening now include heavy…
-
Members recently partially lost vision in both eyes
Any members on here recently partially lost vision in both eyes?
-
UC50 form - spinal stenosis diagnosis
Hi everyone, Its been 3 months since my spinal stenosis diagnosis. I had nerve block injections just over a week ago on L2, L3 & L3/4. The pain is returning and I'm finding myself struggling emotionally. The last 8 years have been a big challenge following my Hydrocephalus diagnosis and subsequent brain surgeries which…
-
Hi, my name is zunnurain! My 1 year son has talepis. What can I do while waiting for appointment?
My 1 year son has talepis. We asked gp to refer for a proper professional of it and they recommend hospital. And said that it may take 6 months to get appointment. My son wants to stand and it pains me when I see it and think about the distant appointment. Please recommend me what I can do now? Really appreciate your…
-
HEDS or JHD
Family member dignosed with JHD/low muscle tone some years ago but upon more reading I am thinking it could be HEDS?? Toes dislocate, ankles give way and have podiatry made shoes with insoles, shoulder pops out, use hand splits, knees give way, headaches, eye sight affected, body pain, back has gone ridge to support frame…
-
High Myopic macular degeneration, CVN, Macular Hole
Progressive myopia, CVN, macular hole, bleeds at the back of the eye started at age 20 so some years ago, 1st bleed the vision in one eye was lost with in a flash, I was taken to A&E within 30mins and seen 8 hours later and sent home didn’t really explain in detail at the time but was told there was nothing they could do…
-
Diabetic and think I will be diagnosed partially sighted
I am a 47 year old type 1 diabetic I’m having problems with my eyes for the past month no one has actually diagnosed anything but I can’t see properly so feel I will be diagnosed partially sighted. Anyone else on here in same situation?
-
Hydrocephalus Awareness Week 2024...
Hydrocephalus Awareness Week 2024 runs from 4-10/March/2024...
-
Hi, my name is janbri! I am visually impaired and can no longer drive
I am visually impaired and can no longer drive. My husband is disabled and has mobility priblems. Last year he got a blue badge and a disabled soace outside our house, and although it is not for our exclusuve use it gas made a huge difference ti our lives. A fortnight ago a car with a blue badge was parked in it and has…
-
Uterine prolapse
Hi, I was diagnosed with a Grade 1 prolapse 30th November and was referred to a clinic. After 9 weeks I hadn't heard anything so I called my surgery and to cut a long story short It seems I got 'lost' in the system. I have now managed get get an appointment to see a Gynaecologist on 21st April.. so approx 5 months later.…
