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HEDS or JHD
Family member dignosed with JHD/low muscle tone some years ago but upon more reading I am thinking it could be HEDS?? Toes dislocate, ankles give way and have podiatry made shoes with insoles, shoulder pops out, use hand splits, knees give way, headaches, eye sight affected, body pain, back has gone ridge to support frame…
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High Myopic macular degeneration, CVN, Macular Hole
Progressive myopia, CVN, macular hole, bleeds at the back of the eye started at age 20 so some years ago, 1st bleed the vision in one eye was lost with in a flash, I was taken to A&E within 30mins and seen 8 hours later and sent home didn’t really explain in detail at the time but was told there was nothing they could do…
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Diabetic and think I will be diagnosed partially sighted
I am a 47 year old type 1 diabetic I’m having problems with my eyes for the past month no one has actually diagnosed anything but I can’t see properly so feel I will be diagnosed partially sighted. Anyone else on here in same situation?
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Hydrocephalus Awareness Week 2024...
Hydrocephalus Awareness Week 2024 runs from 4-10/March/2024...
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Hi, my name is janbri! I am visually impaired and can no longer drive
I am visually impaired and can no longer drive. My husband is disabled and has mobility priblems. Last year he got a blue badge and a disabled soace outside our house, and although it is not for our exclusuve use it gas made a huge difference ti our lives. A fortnight ago a car with a blue badge was parked in it and has…
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Uterine prolapse
Hi, I was diagnosed with a Grade 1 prolapse 30th November and was referred to a clinic. After 9 weeks I hadn't heard anything so I called my surgery and to cut a long story short It seems I got 'lost' in the system. I have now managed get get an appointment to see a Gynaecologist on 21st April.. so approx 5 months later.…
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Any others with no leg pain? Is this really spinal stenosis?
I have severe lower back pain when I walk or stand. Been going on for 7 years. Diagnosed with severe L4&5 spinal stenosis according to MRI. Pain does not extend down my legs but have buttock and groin pain on left side along with calf muscle cramping. Is this really spinal stenosis as I’ve read most people have leg pain.…
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Replacement Knee post op 11 weeks
Hello everyone, my first post. Could anyone advise how they were at 11 weeks post op. I know we are all different but I never know if I am doing too much or too little. I am walking about 7000 steps a day and doing about 15-20 minutes dance to exercise 5/6 times a week now. I do about 10 minutes on my exercise bike twice a…
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Feedback Needed: Voice-Command Fashion Webshop for the Visually Impaired
Hello community, I've been working on an accessible online fashion webshop for the visually impaired, using OpenAIs models for intuitive voice command navigation and detailed audio descriptions. It's designed to offer a seamless shopping experience, but it's still a prototype, meaning you can't make purchases yet. I'm…
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Considering buying a wheelchair - should I ask my GP?
Hello my name is Jeff, I was just 17 in 1989 when I had my first back surgery and had to have a second surgery 3 weeks later. I had a 3rd discectomy in 2006 to remove bone which had grown over the original surgical spot. In 2016 surgeons were telling me I would need spinal fixation/fusion and suddenly out of the blue was…
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Nerve issues after Cauda Equina
Hi all. I had discectomy and decompression surgery in December after weeks of 'sciatica' was ignored by doctors ending up with a visit to A&E, an MRI and a diagnosis of Cauda Equina Syndrome. My recovery seemed to be going well but I'm finding i can only sit/stand for a couple of hours before numbness in my legs sets back…
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Hi, my name is Lawhite0151!type 3 achalasia a disability?and has anyone had POEM or Fundoplication?
Hi guys, I have been suffering from achalasia for the past year. Have just found out that I have type 3, Had balloon dilatation 30% but it’s literally only worked by 30%. Consultant has sent me a letter that they are not going to try again with dilation and consulting with surgeons to decide weather to to perform POEM or…
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Hi, my name is Mazzy21! Has anyone else's foot size changed after surgery?
Hi I had surgery 9 weeks ago and now have a foot about a size and half smaller than the other ,looking for help and advice from others like this please
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Hi, my name is SANDRA65! asking for any tips/advice about ataxia
hello,just asking for any tips/advice about ataxia always had it but did nt know much about it till i was about 38, thanks
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Hi, my name is susiedavies!struggling with mg symptoms but my neurologist has not acknowledged mg
Hi everyone im struggling with mg symptoms but my neurologist has not acknowledged mg yet even though 2 blood tests showed up one marker for it waiting to see him again as my symptoms have progressed to weak legs
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Pension payments
I am 64 on the 28th of January and have recently checked out my pension amount and realised that I will be six years missing from my full pension as when I was able to work for two different employers I paid in to there private pension scheme and when I was made redundant from the second job I withdrew my pension and used…
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Deregistered at surgery
Was just wondering what to do as I have been deregistered at my surgery. All I did was ask for help getting this smelly yellow (parasite?) thing off my skin. Whatever it is it's been very resistant to come off. I don't know where it leaves patients when clinicians can't engage with the real world. I went privately to two…
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Guide dogs
Hi I’m registered SSI I have tunnel vision with a nystagmus. I applied for a guide dog and all the assessments were going well until the last one. it’s much harder than I thought to follow the guide dog. I know that sounds insane. Today I walked with the assessor holding the harness. I’ve adapted to getting around my own…
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Hello, I want to get advice for going to the doctors about M.E/CFS
Hello, I'm new here. I want to get advice for going to the doctors about M.E/CFS. I'm very nervous about it
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FND & the physio that actually works ?
Hi everyone I was diagnosed with FND 8 months ago after 2 years of limbo. At first I thought it was a relief and the promise of access to services like community Neuro and neurophysio seemed great. But 4 months of back and forth I realised there is never a physio involved all we did was talk. I feel I gave them a lot more…