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Still a medical mystery after being in chronic debilitating pain for 2 years
Hi, I'm Elena, I'm 21, a neuroscientist and I've been living with chronic pain for 2 years. Well technically I've had scoliosis for 10+ years but the pain has been severe and disabling for 2. When I was diagnosed with scoliosis at age 11, it was only 14 degrees, so only mild. I followed physiotherapy, did my exercises and…
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Targeted screening carotid duplex evaluation advised
Hiya everyone ? I was wondering if anyone has had this test done before if so what do they do any advice would be great thanks ?
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I am being reffred to a Neurological Consultant
Hi to all, I am being reffered to a neurological consultant as as I now have weakness in both hands no grip and feel very weak and also weakness in my leg too still and balance problems also and when I went to fill the hot water bottle for my back and joints I overfilled it which ended up with me having a scalded hand so I…
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GI Symptoms, B12 Deficiency, Muscle Spasms
Hi there, I think I'm here for some moral support and advice since I've been living with something undiagnosed for a year now and it has recently got worse. I am female and 23 years old. A year ago I suddenly got very bad diarrhoea and have had it every day since (although not as severe as when it started). The thing that…
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Hi, my name is charlietea. Undiagnosed 8.5 years
Hello, it has been 8.5 years of battling an undiagnosed neurological condition. What an eye opening, disappointing, life altering, absolutely fantastic time that I am sure many can relate to. My story all started in 2012 when I was 25, presenting as sudden onset lumber pain, quickly followed by leg pain and weakness, a…
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Look for help, can you suggest who I can turn too and help my case?
Firstly, my name is Chloe, I am a 22-year-old female. I have been left feeling extremely disappointed, frustrated and upset that I am currently in a situation where I have received numerous consultations over the past two years with various specialists, and I have been in excruciating pain throughout, and no one seems to…
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Could anyone shed some light on my initial MRI feedback?
I went for brain, and full spinal mris 3 weeks ago and received a letter yesterday with a brief overview of results to be gone through fully at my next neuro appointment in 4 weeks. I dont really understand the information and wondered if anyone could shed more light on it? The main section i dont fully understand is the…
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Hi, I'm 2LoobyLou and I have Cauda Equina Syndrome
Hello, I'm Jo 12 months ago I had emergency spinal surgery for decompression (I thought I had a bad back), I wasn't expecting surgery! I was then taken to theatre again the next morning as I had no feeling in my right foot. Long story short, I have Cauda Equina Syndrome and have no feeling below either knee, have lost…
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Bad experienc diagnosing fungus skin infection?
I e wrote here before about this but I want anyone to write here who has had the experience of not being diagnosed being misdiagnosed. Being right and doctors simply not listening from frankly their lack of intelligence. Yes, I'm fed up. They should be hiring someone like me to diagnose these skin problems because I am…
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MS or fibromyalgia
Hi everyone hope you're all ok. I was recently diagnosed
with fibromyalgia, which runs in my family. I am very concerned I have been misdiagnosed, I have a
head tremor (looks like I am saying no over and over) I also feel like I have a
constant cold, runny nose and sore throat. Fatigue, headaches and so on. I don’t
really…
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No diagnoses, fobbed of by doctors
Hi all. I'm just going to jump straight in. Nearly 16 years ago i had an accident whilst trampolining at school. I landed a move badly which resulted in a temporary paralysis (literally only 10-15 mins until I could move) and I have had severe back pain ever since in L1,L2,L3 area and L5,S1,S2area. A few months after my…
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Breathe disability film
Hi Did anyone watch the film breathe last night About a man who got polio and became paralysed and his and his wife fight to get him out of hospital and living a more supported family life set in the 60s Worth a watch
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Anyone?
Please can anyone else with Sugrens Syndrome please come say hi & we can compare notes lol.
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spastic paraplegia
Hi everyone, I’m just looking for some advice or guidance I’m 19 years old and have had issues with walking and chronic pain in my legs for a few years and I have been diagnosed with spastic paraplegia which is highly likely to be the hereditary one. I’m lucky in that I can walk 45 minutes without too much pain while…
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Cop/boop.
Hi, im mark, i have a rare lung disease called Chryptogenic organising pneumonia, Ive had it for about 5 years now, just curious if anyone here has it ir knows of anyone, i suspect it was from my previous job, working in plant/boiler rooms in a university, sweeping, mopping and painting the floors. My only ppe was a paper…
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Does anyone know a counselling service in Northamptonshire specialising in epilepsy?
Hi I would just like to know if anyone knew of any counsellors based in the Northamptonshire area that specialise in epilepsy and in giving counselling to those with epilepsy as I got my epilepsy through my Right sided hemiplegia.
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Coming to terms with brain injury
Hello , I hope this finds you well . I had an accident last May , I was told I have a subdural haematoma but , I don’t feel like I’m getting better. I’ve had terrible balance, my memory lets me down, I forget loads of things, even what I’m saying , I am terrified to go out, I have ptsd about my stairs, my temper, well I…
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Tourette’s syndrome
Please help us change things for people with Tourette’s by signing the petition https://petition.parliament.uk/petitions/575370 this post gives a bit more info https://www.facebook.com/1187681671/posts/10224717261857414/?d=n
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Hi I'm Shonshi41! I've been dealing with a condition for 2 years, and non of my drs can diagnose it
I’ve been dealing with a condition for two years now. None of my doctors can diagnose it. It starts with a small red pimple and erupts into an open wound that burns, stings, stabbing pain. I can’t walk, stand, or anything. I’ve had three of them since March 2019. I just had my last surgery almost two weeks ago. I’ve had a…
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Hi to all. My so-called friend said that I didn't need my walking sticks. What do you think?
I just do not understand it I met with a so called friend this afternoon with one of my walking sticks as I would need the other hand for the basket I went into shop picked up what I wanted to buy put the basket down and I lost my grip and my basket contents went on to the floor a nice lady picked them back up for me and I…
