Does anyone know a counselling service in Northamptonshire specialising in epilepsy? — Scope | Disability forum
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Does anyone know a counselling service in Northamptonshire specialising in epilepsy?

Smells05
Smells05 Community member Posts: 4 Listener
Hi 
I would just like to know if anyone knew of any counsellors based in the Northamptonshire area that specialise in epilepsy and in giving counselling to those with epilepsy as I got my epilepsy through my Right sided hemiplegia. 

Comments

  • woodbine
    woodbine Community member Posts: 11,521 Disability Gamechanger
    Hi might be worth asking either your GP or if you are under an epilepsy nurse at the hospital ask them?
    2024 The year of the general election...the time for change is coming 💡

  • Smells05
    Smells05 Community member Posts: 4 Listener
    I have an epilepsy specialist nurse my General practice are rubbish. But it’s difficult as a epilepsy specialist nurse isn’t a counsellor and I also have right sided hemiplegia. It’s coming to terms with it as the epilepsy has and is destroying my life.
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    Hello @Smells05

    I'm having difficulty finding a counsellor specialising in epilepsy and wondered if you would benefit from one trained in chronic illness more generally.  You could try self-referring to a local NHS psychological therapy service and in your initial assessment they would advise if anyone in their team/any of their services could help.

    While, there is always the option of paying privately (prices generally start upwards from £40 an hour).  The British Association for Counselling and Psychotherapy have a 'search for a therapist' webpage that allows you to look locally.  In the search tool you can enter a specific problem or specialism however again you might have more joy searching with 'health' or 'chronic illness'. 

    Besides these, there are mental health helplines/organisations you can contact anytime should you feel that your thoughts are overwhelming, they are:
    • The Samaritans on 116123 or by emailing jo@samaritans.org
    • SHOUT by texting 'SHOUT' to 85258 to speak to a trained crisis volunteer
    I hope things get easier soon and if you ever want to talk/vent, we are here for you.
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  • woodbine
    woodbine Community member Posts: 11,521 Disability Gamechanger
    Smells05 said:
    I have an epilepsy specialist nurse my General practice are rubbish. But it’s difficult as a epilepsy specialist nurse isn’t a counsellor and I also have right sided hemiplegia. It’s coming to terms with it as the epilepsy has and is destroying my life.
    I was suggesting that you ask an epilepsy nurse to point you in the direction of relevant counselling.I fully understand how epilepsy is difficult to come to terms with as I have had severe uncontrolled epilepsy for 23 years now, but I did find in the early days that counselling helped me come to terms with it and to understand that my epilepsy didn't define who I was and never will.
    2024 The year of the general election...the time for change is coming 💡

  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    Hi @Smells05
    I would contact the Epilepsy Society, here are their Support Pages. I would also suggest taking HemiHelp's Online Checklist. It might identify areas where you could need extra help.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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