Does anyone know a counselling service in Northamptonshire specialising in epilepsy? — Scope | Disability forum
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Does anyone know a counselling service in Northamptonshire specialising in epilepsy?

Smells05
Smells05 Member Posts: 3 Listener
Hi 
I would just like to know if anyone knew of any counsellors based in the Northamptonshire area that specialise in epilepsy and in giving counselling to those with epilepsy as I got my epilepsy through my Right sided hemiplegia. 

Comments

  • woodbine
    woodbine Member, Community Co-Production Group Posts: 7,720 Disability Gamechanger
    Hi might be worth asking either your GP or if you are under an epilepsy nurse at the hospital ask them?
    Be extra nice to new members.
  • Smells05
    Smells05 Member Posts: 3 Listener
    I have an epilepsy specialist nurse my General practice are rubbish. But it’s difficult as a epilepsy specialist nurse isn’t a counsellor and I also have right sided hemiplegia. It’s coming to terms with it as the epilepsy has and is destroying my life.
  • Cher_Inactive
    Cher_Inactive Posts: 4,400 Scope online community team
    Hello @Smells05

    I'm having difficulty finding a counsellor specialising in epilepsy and wondered if you would benefit from one trained in chronic illness more generally.  You could try self-referring to a local NHS psychological therapy service and in your initial assessment they would advise if anyone in their team/any of their services could help.

    While, there is always the option of paying privately (prices generally start upwards from £40 an hour).  The British Association for Counselling and Psychotherapy have a 'search for a therapist' webpage that allows you to look locally.  In the search tool you can enter a specific problem or specialism however again you might have more joy searching with 'health' or 'chronic illness'. 

    Besides these, there are mental health helplines/organisations you can contact anytime should you feel that your thoughts are overwhelming, they are:
    I hope things get easier soon and if you ever want to talk/vent, we are here for you.
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  • woodbine
    woodbine Member, Community Co-Production Group Posts: 7,720 Disability Gamechanger
    Smells05 said:
    I have an epilepsy specialist nurse my General practice are rubbish. But it’s difficult as a epilepsy specialist nurse isn’t a counsellor and I also have right sided hemiplegia. It’s coming to terms with it as the epilepsy has and is destroying my life.
    I was suggesting that you ask an epilepsy nurse to point you in the direction of relevant counselling.I fully understand how epilepsy is difficult to come to terms with as I have had severe uncontrolled epilepsy for 23 years now, but I did find in the early days that counselling helped me come to terms with it and to understand that my epilepsy didn't define who I was and never will.
    Be extra nice to new members.
  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @Smells05
    I would contact the Epilepsy Society, here are their Support Pages. I would also suggest taking HemiHelp's Online Checklist. It might identify areas where you could need extra help.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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