Neurological conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Coming to terms with brain injury

Taniat73Taniat73 Member Posts: 8 Listener
edited March 13 in Neurological conditions
Hello , I hope this finds you well . I had an accident last May , I was told I have a subdural haematoma but , I don’t feel like I’m getting better. I’ve had terrible balance, my memory lets me down, I forget loads of things, even what I’m saying , I am terrified to go out, I have ptsd about my stairs, my temper, well I get so frustrated I literally scream.  I feel like I’m going mad .   Can anyone understand me ? 

Replies

  • woodbinewoodbine Community Co-Production Group Posts: 4,522 Disability Gamechanger
    Have you spoke to your GP about getting some help, I found counselling to be helpful.
    "Putting a child into care, isn't caring for a child" (T.Rhattigan)
  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi and welcome sorry to hear about your accident and how it is affecting you 

    As above speak to your gp or specialist to see if they can point you to any support 
  • Taniat73Taniat73 Member Posts: 8 Listener
    Hello , thank you for your reply. My Dr basically called me a drug addict so we parted ways. I’m paranoid and don’t want my new Dr to think I’m a nuisance.    I’m a trained counsellor who cannot now ethically operate , I haven’t been offered any help , my fault probably. I’m struggling to cope as new me. I feel useless and I’m scared too .   I’m scared to say my feelings too because people might think I’m mad .  Thank you for listening . Tania. Xx
  • mikehughescqmikehughescq Member Posts: 6,637 Disability Gamechanger
    I had eye surgery 11 years ago and what ought to have been straightforward was anything but. I couldn’t really get to grips with it until our head of OHU, who knew nothing about my eye conditions, nor the obscure surgery I had, made a very simple statement. 

    “Nothing impacts your sense of self more than eye or brain surgery.” You may not be better. You are different and in some senses you have a clean slate. However, it was that statement about sense of self which hit home. Your experience has changed who you are. Medically there are medical people who can address some of your questions. On another level you need to contemplate things like counselling in order to start to come to terms with who you are now. No medical/neurologist professional can help you with that. Many won’t even know it’s an issue.

    I can only echo what @woodbine has already said. 
  • Cher_ScopeCher_Scope Posts: 4,059

    Scope community team

    Hi @tania73

    To further echo other comments, please do speak with your new GP.  They are there to support you and won't think you're a nuisance at all.  You have experienced a life-changing event and are understandably going through a period of transition and mixed emotions as you adjust.  Don't listen to that critical voice that says you are useless, you are anything but, and talking therapy would be a great outlet to help you move forward.  Stepping back, I know I too at times have thought 'if people only knew what I was thinking, they'd be shocked/horrified' and the funny thing is, when I've verbalised it, they never have thought that.  Don't let the fear of what if, stop you accessing what you need.

    Please keep us updated and just to inform you, I've moved this post over to our neurological conditions category to allow others with similar stories to see it.  Take care and speak soon.
    Online Community Co-ordinator

    Want to tell us about your experience on the online community?  Talk to our chatbot and let us know.
  • Taniat73Taniat73 Member Posts: 8 Listener
    Thank you. For all your kind words . I’m talking to Mr Neurologist on Tuesday .   I’ll speak with my Drs surgery on Monday .  I’m ok . I’m not alone , and I’m not thinking of anything silly . I’m lucky to be alive , I want to grab the world with both hands and live it . Thank you 😊 
  • Wini1960Wini1960 Member Posts: 129 Pioneering
    Hi Taniat73 babygirl you have been through so much. My husband is a trained counsellor but who counsels the counsellor? It's terrible not to be heard i hope and pray you will get the help you need🙂
  • Taniat73Taniat73 Member Posts: 8 Listener
    Wini1960. Thank you .   I’m terrible in counselling , I know the script so to speak so I preempt it . Does me no good whatsoever!?! I’m a pain in my own backside at times.   
  • Wini1960Wini1960 Member Posts: 129 Pioneering
    Taniat73 aren't we all from time to time. I have mobility and mental health issues and sometimes i drive my husband round the bend but he just knows what to do when I'm not in a good place. There is nothing better when you have been heard and that does not necessarily mean a counsellor. I wish you the best going forward.
Sign in or join us to comment.