Hi I'm Shonshi41! I've been dealing with a condition for 2 years, and non of my drs can diagnose it — Scope | Disability forum
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Hi I'm Shonshi41! I've been dealing with a condition for 2 years, and non of my drs can diagnose it

Shonshi41 Member Posts: 2 Listener
I’ve been dealing with a condition for two years now. None of my doctors can diagnose it. It starts with a small red pimple and erupts into an open wound that burns, stings, stabbing pain. I can’t walk, stand, or anything. I’ve had three of them since March 2019. I just had my last surgery almost two weeks ago. I’ve had a skin graft, a panniculectomy, wound debridements, and parathyroid surgery. I still have no clue what this is and what could stop it.


  • janer1967
    janer1967 Member Posts: 16,311 Disability Gamechanger
    Hi and welcome 

    Sorry to hear about your health condition and hope you get some answers and recover from the surgery 

    Feel free to join in or ask any questions 
  • Sandy_123
    Sandy_123 Member Posts: 4,648 Disability Gamechanger
    Hi @Shonshi41 that must be awful not knowing what courses are, hopefully the Drs can get to the bottom of it for you. 
  • Tori_Scope
    Tori_Scope Posts: 9,505 Scope online community team
    Welcome to the community @Shonshi41 :) I'm sorry to hear that you haven't yet been able to get a diagnosis for your condition. 

    How did the latest surgery go? Could you be referred to any other specialists who could look into the condition?

    Just to let you know, I've renamed your post slightly and moved it into our category for discussions relating to undiagnosed and rare conditions. 
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  • Shonshi41
    Shonshi41 Member Posts: 2 Listener
    I just came from my surgeon and I’m scheduled for more surgery next week. The wound isn’t closing. I’m just staying positive that this surgery is successful. Unfortunately I very familiar with back to back surgeries.


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