Undiagnosed and rare conditions
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Hi I'm Shonshi41! I've been dealing with a condition for 2 years, and non of my drs can diagnose it

Shonshi41Shonshi41 Member Posts: 2 Listener
I’ve been dealing with a condition for two years now. None of my doctors can diagnose it. It starts with a small red pimple and erupts into an open wound that burns, stings, stabbing pain. I can’t walk, stand, or anything. I’ve had three of them since March 2019. I just had my last surgery almost two weeks ago. I’ve had a skin graft, a panniculectomy, wound debridements, and parathyroid surgery. I still have no clue what this is and what could stop it.


  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi and welcome 

    Sorry to hear about your health condition and hope you get some answers and recover from the surgery 

    Feel free to join in or ask any questions 
  • Sandy_123Sandy_123 Member Posts: 1,541 Pioneering
    Hi @Shonshi41 that must be awful not knowing what courses are, hopefully the Drs can get to the bottom of it for you. 
  • Tori_ScopeTori_Scope Posts: 5,039

    Scope community team

    Welcome to the community @Shonshi41 :) I'm sorry to hear that you haven't yet been able to get a diagnosis for your condition. 

    How did the latest surgery go? Could you be referred to any other specialists who could look into the condition?

    Just to let you know, I've renamed your post slightly and moved it into our category for discussions relating to undiagnosed and rare conditions. 
    Online Community Coordinator, she/her

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  • Shonshi41Shonshi41 Member Posts: 2 Listener
    I just came from my surgeon and I’m scheduled for more surgery next week. The wound isn’t closing. I’m just staying positive that this surgery is successful. Unfortunately I very familiar with back to back surgeries.
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