I am being reffred to a Neurological Consultant — Scope | Disability forum
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I am being reffred to a Neurological Consultant

Sparklebright63
Sparklebright63 Member Posts: 103 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi to all,

I am being reffered to a neurological consultant as as I now have weakness in both hands no grip and feel very weak and also weakness in my leg too still and balance problems also and when I went to fill the hot water bottle for my back and joints I overfilled it which ended up with me having a scalded hand so I had to put under the tap quickly more than once.

Sparklebright63. :/
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Comments

  • wilko
    wilko Member Posts: 2,457 Disability Gamechanger
    @Sparklebright63, with few hospitals having face to face appointments you may have to wait for this or the consultation may be done over the phone and if required an MRI appointment made for you if the consultant thinks it’s necessary to get a better understanding of your condition. No wishing to guess anything so wait and see what transpires and be careful.
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  • Cher_Inactive
    Cher_Inactive Posts: 4,400 Scope online community team
    edited March 2021
    @Sparklebright63 I'm sorry you are experiencing those symptoms and a referral to neurology sounds like a wise option.  Make sure to be careful with your kettle and hot water bottle as I don't want you getting scalded again.  Good luck and let us know how you get on   <3
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  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Sorry to hear this @Sparklebright63 please keep us updated :)
    Disability Gamechanger - 2019
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  • Pixie51
    Pixie51 Member Posts: 70 Courageous
    edited April 2021
    Best of luck @Sparklebright62 I am in the same position. I saw the neuro face to face in december as she wanted to look at my motor skills then had a brain and spine mri in January which showed up brain lesions and then had a consultation with the neuro over the phone in March to talk through more testing. I had evoked potential tests two weeks ago and am having a lumbar puncture next Monday. You are in the right hands to try and pin down why you are getting these symptoms. 
    Pix ?
    Yoga heals the soul ??
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  • Sparklebright63
    Sparklebright63 Member Posts: 103 Connected
    Hi to all,

    Hi Pixie hope all goes well for 
    You

    I have not had my neurological assessment yet pikie but I am being put forward for issues with and because I have pstd trauma symptoms they are phoning me Thursday to let me know what's going to happen next.

    All the best.
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  • Pixie51
    Pixie51 Member Posts: 70 Courageous
    Its good they are giving good communication. I also have ptsd and was diagnosed with fibromyalgia 7 years ago although felt it was a bit of a get rid of me tactic. Let us know how you get on, on Thursday. I found it really helpful to write a timescale of symptoms and a whole list of symptoms which the neuro said was really helpful! I would never have remembered! ? 
    Pix x
    Yoga heals the soul ??
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  • Tori_Scope
    Tori_Scope Posts: 9,644 Scope online community team
    Good luck for Thursday @Sparklebright63 :) Let us know how it goes. 
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  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    it's good to hear from you again @Sparklebright63 - I hope you find out more on Thursday. :)
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  • Welshjayne2021
    Welshjayne2021 Member Posts: 85 Courageous
    Hi @Sparklebright63.  I went to see a neurologist a few years ago and had a brain scan.  At the time, I didn’t think they helped.  But now I realise that they were telling me a Post Impairment Syndrome.  It all makes sense now.  And can I suggest that you buy a microwaveable hot water bottle.  I got mine from a well known auction site.  It will save your hands.
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  • Sparklebright63
    Sparklebright63 Member Posts: 103 Connected
    Welshjayne2021,

    Thankyou for your info I have not heard of the above condition.

    All the best.
    Sparklebright62.
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