If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
I am being reffred to a Neurological Consultant

Sparklebright63
Member Posts: 103 Connected
Hi to all,
I am being reffered to a neurological consultant as as I now have weakness in both hands no grip and feel very weak and also weakness in my leg too still and balance problems also and when I went to fill the hot water bottle for my back and joints I overfilled it which ended up with me having a scalded hand so I had to put under the tap quickly more than once.
Sparklebright63.
I am being reffered to a neurological consultant as as I now have weakness in both hands no grip and feel very weak and also weakness in my leg too still and balance problems also and when I went to fill the hot water bottle for my back and joints I overfilled it which ended up with me having a scalded hand so I had to put under the tap quickly more than once.
Sparklebright63.

Comments
-
@Sparklebright63, with few hospitals having face to face appointments you may have to wait for this or the consultation may be done over the phone and if required an MRI appointment made for you if the consultant thinks it’s necessary to get a better understanding of your condition. No wishing to guess anything so wait and see what transpires and be careful.
-
@Sparklebright63 I'm sorry you are experiencing those symptoms and a referral to neurology sounds like a wise option. Make sure to be careful with your kettle and hot water bottle as I don't want you getting scalded again. Good luck and let us know how you get onOnline Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
Sorry to hear this @Sparklebright63 please keep us updatedDisability Gamechanger - 2019
-
Best of luck @Sparklebright62 I am in the same position. I saw the neuro face to face in december as she wanted to look at my motor skills then had a brain and spine mri in January which showed up brain lesions and then had a consultation with the neuro over the phone in March to talk through more testing. I had evoked potential tests two weeks ago and am having a lumbar puncture next Monday. You are in the right hands to try and pin down why you are getting these symptoms.
Pix ?Yoga heals the soul ?? -
Hi to all,
Hi Pixie hope all goes well for
You
I have not had my neurological assessment yet pikie but I am being put forward for issues with and because I have pstd trauma symptoms they are phoning me Thursday to let me know what's going to happen next.
All the best. -
Its good they are giving good communication. I also have ptsd and was diagnosed with fibromyalgia 7 years ago although felt it was a bit of a get rid of me tactic. Let us know how you get on, on Thursday. I found it really helpful to write a timescale of symptoms and a whole list of symptoms which the neuro said was really helpful! I would never have remembered! ?
Pix xYoga heals the soul ?? -
Good luck for Thursday @Sparklebright63
Let us know how it goes.
Online Community Coordinator, she/her
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to tell us how we're doing? Complete our feedback form now. -
it's good to hear from you again @Sparklebright63 - I hope you find out more on Thursday.
-
Hi @Sparklebright63. I went to see a neurologist a few years ago and had a brain scan. At the time, I didn’t think they helped. But now I realise that they were telling me a Post Impairment Syndrome. It all makes sense now. And can I suggest that you buy a microwaveable hot water bottle. I got mine from a well known auction site. It will save your hands.
-
Welshjayne2021,
Thankyou for your info I have not heard of the above condition.
All the best.
Sparklebright62.
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 840 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 302 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 705 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.