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Decline In Cognitive Dysfunction
A long history of cognitive dysfunction Back in the 90s, my university gave me lots of extra support on the back of a cognitive function and memory assessment I paid for privately.. I was in my mid-30s at that time. I adjusted pretty well by accepting that the issues that had followed me all through my schooling had…
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Colitis
Been struggling with colitis symptoms. Got to try some different medication to see if it helps. Feeling a bit down.
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Hi, my name is dennisR! suffering with side effects of the Covid vaccine
Iam suffering with side effects of the Covid vaccine and looking for others in a similar situation
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Hi, my name is wol139! my neurologist suspects I have hsp
Hi there. I’m a lil scared as my neurologist suspects I have h s p I’m waiting for brain mri at mo. I have all the symptoms and it’s progressing. Need someone to talk to. X
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MS and coronavirus
What would you say to somebody who has MS and is terrified of catching COVID. As a result is afraid of entering any inside rooms preferring to stay outside apart from her own home?
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Astrazenica
Hi all im trying to find out about what i can do regarding side effects i had from Astrazeneca After couple of week of having vaccine i was hospitalised with pulmonary embolism and five clots in leg luckily recovered but due to the strain it put on my heart trying to pump blood past clots has damaged heart left me with a…
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PVNS anyone else heard of it?
Saw my orthopaedic consultant Thursday 12th Aug who was surprised by my MRI scan on my left knee. I have a rare tumour called pigmented villonodular synovitis or PVNS for short. He said unfortunately not much is known about it but it can't spread to other joints. I am not convinced as my left hip is also incredibly painful…
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Does anyone else have Congenital Adrenal Hyperplasia?
Hello everyone! My name is Amber and I have Congenital Adrenal Hyperplasia. To simplify, it means my adrenal glands don't work and the treatment is to take steroids for life. My body can't cope with stress/illness and would need a higher dose of prednisolone to treat or in emergencies an injection which would lead to a…
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Aphasia
Aphasia Greek language for ‘NOT SPEAK’ - inability to understand or speak as of a ‘damaged brain.' In December 2016 – after Christmas, I fell over and hurt my head and didn’t remember. I woke up again in the hospital, and I was in an intensive care ward. I asked some questions to the nurses, but I couldn’t speak. I was…
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What to do?
Terrible treatment still from doctors and dermatologists on NHS but worried about spending money on private dermatologists only to get the same treatment. One clinic from Harley Street said they couldn't help me as the clinician I saw was a 'leading authority'. I rang up a few but I have no idea where to go from here. I…
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I have PXE, and am looking for a way forward in life in terms of money and health
Hi my name is Adam and I'm 38 and from the uk . I suffer with pxe and have lost my job in construction due to my disease . I suffer with macular degeneration , stomach issues and intermittent claudication in my legs . I'm a little lost on a way forward in life . I need help with a way forward money and health wise . I just…
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Achalasia
Hi I seen apost about another lady with achalasia, I have it, ive only just joined I dont know how I comment on posts
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Anxiety twitches
Recently I’ve been getting twitches around my ribs on left side of body. At first I thought it could be a muscle twitch but after reading online its most likely from anxiety. Happens mostly on left side around the top rib but a few times I’ve felt it on right side to of rib too, it’s not painful at all but intrigued has…
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Hi, my name is marty600! Help with Meniere's Disease
Hello Marty here I’ve had me nieces for about six years had a break from it past two years but has come back with a vengeance been rough for three weeks now unsteady and headaches trying betahistine dihydrochloride again can someone tell me there experience with this I couldn’t get on with it before be glad for any info…
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WHO IS TALKING TO A WALl
?
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Invisible conditions
I have invisible conditions, ( hidden disabilities) . I never realised the issues I have where classed as hidden disabilities. It's actually put my mind at rest .
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Research into Rare Disease Epidural Lipomatosis
Hi, I have been diagnosed with... Epidural Lipomatosis... What is that? Have you heard about it before? I had never heard of it before. I have been suffering from back pain for around 7 years. I was complaining 6 years ago. I even said to my physiotherapist that I felt I would end up in a wheelchair by the time I was 40…
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Foot Drop Mid 40’s Male
Hi, Hello! I was diagnosed on first visit to my GP with Foot Drop. They referred me to my local hospital where, 2 MRIs later, they have ascertained my condition is not connected to spinal or bone pressure on a nerve and now I’m joining a waiting list for Neurological examination. It appears this is not good news as it…
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Anyone have Neurofibromatosis 1
Anyone has has NF1 and wants to chat
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Hi, my name is NimbusInk! was diagnosed with PoTs a couple of years ago
Hi,. I'm a 34 year old mother of 1 and was diagnosed with PoTs a couple of years ago.
