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Hi, my name is Lunadog! I am considering fusion surgery
Hello everyone, I am here because I can hardly walk due to a numbness/partial paralysis of my right leg. I had surgery, but it failed to help me still have condition 8 months later I am considering fusion surgery , But of course I am skeptical that it will reverse my condition. I hope that we can share our experiences, and…
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I have an undiagnosed symptom that is so strange that explaining itself is a difficulty
Hi all, I apologize if this is not the right place to post a rather long and personal story, but I have been struggling with my own emotion for so long that I just wish to be able to share, to write down how this condition makes me feel physically and mentally. I guess the best way to explain what I have is to say that it…
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Worried after CES surgery
Hi I have suffered with sciatica for years now but in march this year i had emergency surgery on my spine L4-L5 discectomy and decompression for cauda equina syndrome...however its now 3 months on and my back feels the same as it did before the op..so if they had decompressed the nerve why do I feel like this again...I'm…
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Chronic Kidney Disease
I was diagnosed with Stage 3 Chronic Kidney Disease yesterday, just wondering if anyone else has this? I've been hospitalised twice with kidney infections, the most recent being in September last year - both times I've been really severely poorly with it and it's just not a pleasant thing to experience. I've got one kidney…
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FND
Hi ,I was diagnosed with FND a year ago.I have mobility issues,fatique,arm ,shoulder, neck pain,tremors ,hallucinations,noise intolerance .I am 49,married to a fabulous man and have 2 boys and a dog.glad to be part of this group.any one else have FND?
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Clinically isolated syndrome
So I was diagnosed with transverse myelitis.. at my appointment a year ago I was under the understanding I was just diagnosed with that.. but they hadn't received my lumbar puncture results. Got a call a few days later saying the spinal fluid was inflamed meaning I was at a higher risk of another attack. Anyway last Monday…
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I think i have carpal tunnel syndrome
My right hand and arm is weak and at night tingles and goes numb. This started two days ago. I think it due to overuse or sleeping in my right side a lot. I struggle to do certain tasks and it's making me get worried. I hope it doesn't get worse I hope it gets better. I'm 31 female, got a lot of health issues it's…
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Fnd
Hi, I have been told I have fnd, but they way I was told was " my mind is playing tricks on me " I have limited use in left arm leg, feel like they have had an injection to numb them, migraines, get confused and loose interest in things and can't find my words when I speak, and pain in joints and muscles This started March…
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PIP EVIDENCE
Does anyone know how long it takes for pip to send text evidence received after sending it off ??
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Degenerative Disc Disease
Hello, I’m Dave and live in Telford. I’m interested in the views about the above especially when it comes to claiming PIP. I’ve worked all my life but are coming to the stage where DDD is making my job very difficult to do. I’m 58 years of age.
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Decline In Cognitive Dysfunction
A long history of cognitive dysfunction Back in the 90s, my university gave me lots of extra support on the back of a cognitive function and memory assessment I paid for privately.. I was in my mid-30s at that time. I adjusted pretty well by accepting that the issues that had followed me all through my schooling had…
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Colitis
Been struggling with colitis symptoms. Got to try some different medication to see if it helps. Feeling a bit down.
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Hi, my name is dennisR! suffering with side effects of the Covid vaccine
Iam suffering with side effects of the Covid vaccine and looking for others in a similar situation
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Hi, my name is wol139! my neurologist suspects I have hsp
Hi there. I’m a lil scared as my neurologist suspects I have h s p I’m waiting for brain mri at mo. I have all the symptoms and it’s progressing. Need someone to talk to. X
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MS and coronavirus
What would you say to somebody who has MS and is terrified of catching COVID. As a result is afraid of entering any inside rooms preferring to stay outside apart from her own home?
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Astrazenica
Hi all im trying to find out about what i can do regarding side effects i had from Astrazeneca After couple of week of having vaccine i was hospitalised with pulmonary embolism and five clots in leg luckily recovered but due to the strain it put on my heart trying to pump blood past clots has damaged heart left me with a…
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PVNS anyone else heard of it?
Saw my orthopaedic consultant Thursday 12th Aug who was surprised by my MRI scan on my left knee. I have a rare tumour called pigmented villonodular synovitis or PVNS for short. He said unfortunately not much is known about it but it can't spread to other joints. I am not convinced as my left hip is also incredibly painful…
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Does anyone else have Congenital Adrenal Hyperplasia?
Hello everyone! My name is Amber and I have Congenital Adrenal Hyperplasia. To simplify, it means my adrenal glands don't work and the treatment is to take steroids for life. My body can't cope with stress/illness and would need a higher dose of prednisolone to treat or in emergencies an injection which would lead to a…
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Aphasia
Aphasia Greek language for ‘NOT SPEAK’ - inability to understand or speak as of a ‘damaged brain.' In December 2016 – after Christmas, I fell over and hurt my head and didn’t remember. I woke up again in the hospital, and I was in an intensive care ward. I asked some questions to the nurses, but I couldn’t speak. I was…
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What to do?
Terrible treatment still from doctors and dermatologists on NHS but worried about spending money on private dermatologists only to get the same treatment. One clinic from Harley Street said they couldn't help me as the clinician I saw was a 'leading authority'. I rang up a few but I have no idea where to go from here. I…
