Chronic Kidney Disease

CountryMimi

I was diagnosed with Stage 3 Chronic Kidney Disease yesterday, just wondering if anyone else has this?

I've been hospitalised twice with kidney infections, the most recent being in September last year - both times I've been really severely poorly with it and it's just not a pleasant thing to experience.

I've got one kidney small than the other and from what I can gather, I was born with that as I was 10 weeks premature and was only 2lb 7oz and have always been prone to UTIs.

The consultant told me not to worry and let it stress me out, but I'm going through so much with my health at the moment that I can't help but worry about it. Thankfully I've got an appointment with my GP in a couple of weeks and I'm hoping she'll be able to give me some support.

rebel11

That's not great news, but it might be an idea to ask your consultant what you can do to improve things, diet, etc.   

CountryMimi

Thank you @rebel11

Yeah, have had a look online and definitely going to make some changes. 

L_Volunteer

Thinking of you @CountryMimi. This all sounds really difficult to deal with and particularly worrying for you at the moment. You have done really well to reach out to us.

Do you, currently, have access to support from the consultant and other health professionals? They might be best placed to support you through this and advise you the best way they can.

Wishing you the best of luck with the appointment with your GP. Please do feel free to let us know how this goes and if there's anything else we can do to support you, even if that's just listening 

CountryMimi

Thank you so much @L_Volunteer 🥰

I'm due a phone call from the consultant at some point in the next 2 or 3 weeks, but other than that, I've just got my phone call with the GP - I've managed to build a rapport with a specific doctor there (unfortunately my surgery doesn't have the best reputation, but this lady seems really invested in her patients)

Thank you so much 💖

Sandy_123

Hi @CountryMimi sorry to read about your diagnosis, definately get all the information you need from your drs and consultant with plans how to manage going faward.  I'm sorry I can't really add any more to advise, someone else might have experience with your condition and can add more imput.

CountryMimi

Thank you @Sandy_123 🥰

Sometimes just someone who is kind enough to be that listening ear is more than enough, so thank you so so much 💖

I think it's going to be a waiting game to see what the underlying problem is. It may be that it's just the one kidney I'm having problems with, which I suppose really would be the best case scenario

Sandy_123

Yes it would, consultant might have some tricks up his/her sleeve, they do some good stuff 

CountryMimi

Yeah, the consultant that I'm under the care of seems really good

Sandy_123

Fingers crossed

Hannah_Alumni

I'm so glad that you have such good support around you from your family (read in other thread). Also that the consultant you have seems really good. Keeping everything crossed!  

CountryMimi

Thank you both 🥰

CountryMimi

Just thought I'd give a little update, had my MRI scan this morning, so should have results within the next two to three weeks.

Had the dye contrast. My veins are always trouble makers, so getting the canula in took nearly as long as the actual scan 😂😂😂

Anyone else's veins like to hide away? 

Sandy_123

Oh wow that was quick keep us updating with results if you want to of course good luck

CountryMimi

I know, couldn't believe it when I received the letter! I will do, thank you so much for your support

Sandy_123

Your very welcome 

Alex_Alumni

Well done for getting the scan done and dusted @CountryMimi, hope you hear about the results in due course  

CountryMimi

Thank you

Anxious about it, but I'll be ok

CountryMimi

Finally had ultra sound done today - was supposed to have had a few weeks back but my car battery went flat and I couldn't get to my appointment. Hopefully hear something soon! 

Alex_Alumni

That's good @CountryMimi hopefully it won't be long until you hear more  

CountryMimi

I've had a text message to say I've got a phone appointment on 2nd June. I'm assuming it's for Kidneys as it didn't say, but it could also be for my back 😂