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Invisible conditions
I have invisible conditions, ( hidden disabilities) . I never realised the issues I have where classed as hidden disabilities. It's actually put my mind at rest .
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Research into Rare Disease Epidural Lipomatosis
Hi, I have been diagnosed with... Epidural Lipomatosis... What is that? Have you heard about it before? I had never heard of it before. I have been suffering from back pain for around 7 years. I was complaining 6 years ago. I even said to my physiotherapist that I felt I would end up in a wheelchair by the time I was 40…
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Foot Drop Mid 40’s Male
Hi, Hello! I was diagnosed on first visit to my GP with Foot Drop. They referred me to my local hospital where, 2 MRIs later, they have ascertained my condition is not connected to spinal or bone pressure on a nerve and now I’m joining a waiting list for Neurological examination. It appears this is not good news as it…
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Anyone have Neurofibromatosis 1
Anyone has has NF1 and wants to chat
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Hi, my name is NimbusInk! was diagnosed with PoTs a couple of years ago
Hi,. I'm a 34 year old mother of 1 and was diagnosed with PoTs a couple of years ago.
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1st Seizure
Good morning everyone. I had a seizure on Thursday and am still recovering but I don't know what to do next? If I tell you what happened any insights will be gratefully received. I've never had an issue before except migraines and I'm 43 male. I was on a course Tuesday and Wednesday with an hour of driving. I had some…
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Multiple sclerosis advice
Hi, I’ve been poorly for over 10 years on and off. Was diagnosed with reactive arthritis, more recently psoriatic arthritis and now fibromyalgia. It’s got bad now and don’t work anymore. I’m not convinced it’s fibro and I’m starting to wonder if it’s ms. Had a mri head scan done Thursday last week so waiting on results as…
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Cerebellar Ataxia
My husband has a progressive brain condition Cerebellar Ataxia so is no longer able to work.
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Daughter living with FND
This discussion was created from comments split from: FND.
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Fibromyalgia or something else?
Hi, I know you guys can’t offer me official advice or diagnoses, I just don’t know who else to ask. For around 6 months I’ve had new symptoms that are very slowly worsening. I have a rheumatologist for lupus, and have a myriad of other issues. My rheumatologist insists these new symptoms are due to my fibromyalgia. I’m not…
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Spinal Stenosis
Hello everyone, I also suffer with Spinal Stenosis
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Any one living with Cauda equina syndrome
Anyone living with the same condition
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Hi, my name is Susric! bile acid malabsorption (BAM) medication supplies
I have suffered with BAM since the lockdown. It took me nearly a year to get the diagnosis as GPs tended to suggest it was IBS or Diverticulitis. Fortunately a Gastroenterologist confirmed I had BAM. I was prescribed Sustain, which didn't work, and then Colesevalem, which did work. I changed my diet to gluten free…
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Hi, my name is Bellante! blood flow to my left leg was not working properly
In 2018 the blood flow to my left leg was not working properly so I
underwent an operation that involved taking a branch from the artery
in my right leg in the groin to the left, big op took 5 hours. It appears the blood
flow to the left is again not working properly and I fear the doctors
are going to suggest amputation,…
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Has anyone been diagnosed Ledderhose disease?
Hi, I'm fairly new here and this is my first post :) I was wondering has anyone ever been diagnosed with Ledderhose disease? Basically I was diagnosed with Dupuytren's diathesis a couple of years ago, basically the most aggressive form of the disease, which, in my case, consisted of dupuytren's contracture, knuckles pads,…
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Wobbly bit/ enlarging lesion
A few months ago the doctors found what they are calling either a wobbly bit or a lesion below my pulmonary valve they still aren’t 100% sure what it is, has anyone else had anything like that? P.s I was born with congenital heart disease Thanks
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Undiagnosed nerve/muscle condition
Hi everyone, I hope all are as well as you can be. This will be a bit of a long winded message but I’ll try and simplify it as much as possible. Basically I’m hoping someone can relate or shed a bit of light onto these ongoing and progressive symptoms I’ve been having since 2014/2015. From what I can remember it all…
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Hi, my name is ciss! I have diverticular disease
I had colonoscopy in 2021, and discovered I have diverticular disease. I've struggled since then with pain , alternating constipation and diarrhea, no help from doc,any advice on what to do when it flares up.? By the way,doc thought it was ibs
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DDD
Hi all I have recently diagnosed with this degeneration loss and degree of lateral central spinal canal stenosis and disc bulge can anyone else relate to this and are we able to get any other benefits for this just wondering Thank you in advance 🙏🥰
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Hi, my name is Sonnyboo17! I am a female with a permenant end Colostomy
I am a female with a permenant end Colostomy ... this came about after 3 major abdominal operations, my last in 2017 was over 10 hours long in which I had to have a large pelvic mass removed as well as an emergency Hartmann's procedure ( Stoma). My bladder was also fused as well as my bowel to my pelvic area due to stage 4…
