Any one living with Cauda equina syndrome — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Any one living with Cauda equina syndrome

Trace12 Member Posts: 3 Listener
Anyone living with the same condition 


  • Tori_Scope
    Tori_Scope Posts: 9,575 Scope online community team
    Hi @Trace12 :) I don't remember any recent discussions where someone has disclosed that they have Cauda Equina syndrome, but we do have a few members with spinal stenosis, which I understand is a similar condition?

    Are you after any specific advice, or just wanting to connect with people in a similar position more generally? 
    Online Community Coordinator, she/her

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us how we're doing? Complete our feedback form now.
  • Trace12
    Trace12 Member Posts: 3 Listener
    Just looking to connect to with people with similar position 
  • tonyt
    tonyt Member Posts: 7 Listener
    Hi trace12,
    I suffer with pain around the top of my left leg, also my left ankle gets pins and needles,
    It comes after walking or standing worse towards the evening,
    I am told its lumber spinal stenosis.
    Presure on the nerves in my back, because its only one leg suggests its where the nerves exit the spine if it was in the central spinal column it would effect both.
    I believe if the condition gets worse and actually damages the nerves then it may become cauda equina syndrome.
    Not 100% but thats how i interpreted it.some years ago i went to doctors with a throbbing pain i kept getting around my big toe it would come and go randomly right the doc said it was a trapped nerve in my back.
    She gave something to calm the nerves and i have not had it since 


Complete our feedback form and tell us how we can make the community better.