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Cerebellar Ataxia

sueflanders69sueflanders69 Member Posts: 3 Listener
edited April 2018 in Neurological conditions
My husband has a progressive brain condition Cerebellar Ataxia so is no longer able to work.
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Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @sueflanders69

    Its great to meet you today.

    I had a Stroke a few years ago now.

    This was in my “Cerebellum”

    Due my “chronic pain”  I had to also take “early retirement”

    Please please let me know if I can help you further?????? 
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  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Hi @sueflanders69, welcome to the community!
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  • JennysDadJennysDad Member Posts: 2,308 Pioneering
    Hello Sue @sueflanders69 and a warm (if in my case slightly delayed) welcome to the community. Glad to have you with us.
    Cerebellar ataxia is a new one on me, but I've not been a member here all that long. Clearly you must have a lot of questions and I am sure we will be able to find some answers for you.
    When you're ready, could you possibly tell us a little more about your circumstances and your husband's condition? The better we get to know you, the more easily we may find ways to be of use to you - and we do, very much, want to be.
    I did find an Ataxia support organisation, Ataxia UK, which you might like to check out if you haven't already.
    Warmest best wishes to you, and looking forward to hearing more from you,
    Richard
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  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Welcome to the community @sueflanders69

    You might like to check out the benefits calculator to see if you are eligible for any financial help?
    Scope
    Senior online community officer
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  • sueflanders69sueflanders69 Member Posts: 3 Listener
    Thank you so much - we will check the benefit tool in case more benefits can be applied for. Tim applied for PIP and only got the daily living allowance and nit the mobility bit which is what he struggles with. We want to apply again but are not sure how to be successful, any advice would be welcome
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  • sunshine22sunshine22 Member Posts: 4 Listener
    Hi my brother has Cerebellar Ataxia diagnosed about 11 yrs ago...I got him pip he is on the highest rate for daily living and mobility.

    Jas
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  • sueflanders69sueflanders69 Member Posts: 3 Listener
    Ah ha thank you so much - could we ask for advice on how you answered your form - are you local to Reading Jas ?
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  • sunshine22sunshine22 Member Posts: 4 Listener
    Hi, sorry no I am in Cheshire.  I used pip points system just google it and it shows you the points you get for daily living and mobility you have to gain enough points to pass and even more to get high rate. My brother got the highest points due to progressive mobility issues and anxiety following a familiar journey...on the mobility part.the daily living also for all the help he needs. I think knowledge of the questions and points awarded for each question is the way...my brother needs a lot of help nowdays....I would say its progressed over the years but slowly.
    Jas x
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