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We want to hear from you: please tell us about your experience of the online community.

Hi, I'm Fliss.

Fliss191679

Hi, everyone my name is Felicity but i prefer to be called Fliss i am 45 years old i became ill in 2019 i was diagnosed with having Wernicke encephalopathy which has left me with a brain injury and stuck in a wheelchair, i am just looking for others are in a similar situation because sadly after i became ill i lost quite a few people.

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Fliss191679

Hi, thank you for your message i would love to hear abit more.

Rachel_Scope

Hi Fliss 😊

Welcome to the community. The Coffee Lounge is great to get chatting, as @Teddybear123 said. You can start your own discussion if there's anything you'd like to talk about too. There are lots of lovely people here who will welcome you and be able to share similar experiences.

Fliss191679

I was my ex husband full time carer ( he has epilepsy ) long story cut short because i was too wrapped up in looking after my ex i neglected my own health i was struggling with being his carer and occasionally helping my dad with my disabled mum

I occasionally had a drink anyway just a few months before my 41st birthday i kept having pains in my head and throat at first my GP said it was tension headaches and stress

I started feeling weak and my legs started feeling like jelly and i would collapse just a few weeks before i was due to go for a CT scan i was rushed to hospital i was in hospital for 4 months

I am now much more stronger but sadly because of the illness i have been left with a brain injury and i am now wheelchair bound

My ex husband left me and i lost a few people

Fliss191679

Yes it is

Fliss191679

Hi, Sadly i don’t really have any friends and family no except for my parents who visit me once a fortnight

I am currently living in a care home but hopefully will have my own place soon

Apart from the garden no i haven’t been out if i am honest the thought of going out scares me

I know it sounds desperate ( not my words ) but i just want to make friends who are in the same situation as me

Fliss191679

it does

Fliss191679

Hi, thank you

Rachel_Scope

Hi @Fliss191679. It seems you've been through so much. Have you made any connections in the care home? It's completely understandable to want to find friends who are in a similar situation to you. They'll be able to understand how it affects you and can empathise.

You could post on https://forum.scope.org.uk/categories/physical-and-neurological-impairments or join in/start a conversation in the https://forum.scope.org.uk/categories/coffee-lounge where you can meet lots of new people and hopefully find someone who can relate to what you're going through 😊

Fliss191679

Hi Rachel

No i tend to stay in my room because majority of the residents are older than me or can’t talk i am the second youngest resident

Rachel_Scope

Do you not feel comfortable talking to older residents? Try joining in some more discussions around the community to start building connections. There are lots of lovely people here to chat to 😊