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PiP. I'm currently receiving the lower level, but my condition has worsened. What do I do?

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Hadley1967
Hadley1967 Community member Posts: 3 Listener
edited June 2022 in PIP, DLA, and AA
Hi, I am currently receiving the lower level of pip, been on this for 4 years plus but my condition has got significantly worse. What do I do 

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  • poppy123456
    poppy123456 Community member Posts: 57,028 Disability Gamechanger
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    Hi,
    A worsening of condition doesn’t automatically entitle you to more points for a higher award. It depend on exactly how your conditions affect you against the 12 PIP activities.
    Before doing anything else you should get some expert advice from an agency near you. https://advicelocal.uk/ You will be able to go into detail about how your conditions affect you and they will advise you whether more points are possible. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi and welcome to the community 

    You can wait till your next review when does your current award end ? 

    Or you can report worsening of conditions bur this will prompt new forms and assessments 

    You should get expert advice before reporting changes and if is only worth doubg if you would get enough points for higher award 
  • Hadley1967
    Hadley1967 Community member Posts: 3 Listener
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    Many thanks for the advice 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,508 Disability Gamechanger
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    Welcome to the community @Hadley1967 :) I'm glad that the above replies have been helpful. Have you had a chance to take a look at the PIP descriptors (pipinfo.net) to see whether you think you could score any additional points, or get in touch with anyone through advicelocal.uk?

    I'm sorry to hear that your condition has worsened. Are you receiving enough support to help you manage this?

    National Campaigns Officer at Scope, she/her

  • Hadley1967
    Hadley1967 Community member Posts: 3 Listener
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    Looking through is was a huge help. Even without professional help in filling the form out, many many areas have changed, having said that, I am currently attempting to book an appointment with my local CA to make sure I get the form as correct as possible. It is such an extra worry with my condition get worse and the thought of failing to mention something or fill the form out incorrectly. 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,508 Disability Gamechanger
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    Booking an appointment sounds like a good idea to me @Hadley1967. I can only imagine how worrying it must feel, but you're taking the right steps. 

    National Campaigns Officer at Scope, she/her

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