I'm really struggling

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mamatomany
mamatomany Online Community Member Posts: 3 Listener
in Families and carers
I don't know where to start. But I feel like I don't want to be here anymore.
I'm really struggling to be around my 4 year old. She has rare conditions and is non verbal and lately all she does is whinge whinge whinge. I have ADHD and the noises she makes Peirce my ears like a knife and I end up leaving the room. Im constantly on edge and filled with anger and hate myself for it. I don't want to lovey life like this 

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  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community 

    I'm really sorry to hear how you are feeling it must be really tough 
    .do you have any friends or family that can help support you 

    Have you spoke to your gp about your concerns 

    Also children's services you may be entitled to some care for a bit of respite for you 
  • mamatomany
    mamatomany Online Community Member Posts: 3 Listener
    I have a partner but we're both struggling to be honest.

    I have spoken to the gp and ruled out depression but I've just had enough of it being like this. 

    I don't have any other family and her father's family aren't involved apart from her aunt who has her now and then, like once every few months for a few days.
    She goes to nursery but that's not enough. She takes up so much time. She takes her clothes odd and wees everywhere or poos. She throws her food every meal and then cries cos she wants or back. I'm constantly cleaning up her mess while she's just whining and I don't know what to do. 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    I'm sorry to hear that things are so tough for you @mamatomany. I've just sent you an email from community@scope.org.uk to see how we can help, so please do keep an eye out for that :) 

    In the meantime, I hope that some other parents are able to give you tips, and share their own experiences. You have an awful lot on your plate, and I'm sure you're not the only one who's faced these kinds of challenges.
  • cornishmummy
    cornishmummy Scope Member Posts: 28 Connected
    How are  things for you at the moment . Would love to help and chat to you. My eldest sounds like your child . 
    Take care 
  • forgoodnesssake
    forgoodnesssake Online Community Member Posts: 517 Empowering
    Sounds really tough.  Have you had any help from a Speech and Language therapist?  You say your daughter is non-verbal so it may be that some of her whining and behaviour is her only way of expressing herself/communicating?  There are lots of ways that communication can be helped which do not involve speech...photos, symbols, signing etc and a speech therapist should be able to help you with this.  Sometimes parents are advised to "wait and see" if a child is not talking but by 4 they can have become very frustrated if they can't express themselves. 
    There is more info here:



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