Confirmation I'm deaf finally

charl1234
charl1234 Online Community Member Posts: 216 Empowering
edited April 12 in Talk about your impairment

I had a ent appointment and hearing test I'm kinda pleased and also kind of distress about fact they have said I've lost most hearing in right ear, awaiting operation for tube removal, which will then lead to no hearing aid apparently on that side, and left side moderate hearing loss and hearing aid

I already have a great number of conditions that affect my daily life and I'm struggling to accept yet more things

I feel worried we take our hearing for granted and boomf it's gone so quickly, with a already difficult life it's just one more struggle to cope with can anyone recommend any charitable organisations that help deaf people with benefits and that kinda thing

And thanks for reading ❤️

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Comments

  • Neffinoo
    Neffinoo Online Community Member Posts: 8 Listener

    Hello,

    I too have finally been diagnosed as deaf. I have next to no hearing in my left ear and very little in my right ear. I am totally reliant on my hearing aids.

    I am a full time carer for my partner who has a neurological disease and is fully reliant on me for all care. I myself have fibro and osteoarthritis, life can be so tough.

    The only organisation I have found helpful are the Sensory Impairment Team who are part of my local county council. Perhaps you could contact them? ? As I struggle with the phone I was able to email them.

    He that helps.

  • charl1234
    charl1234 Online Community Member Posts: 216 Empowering

    I have fibromyalgia also xx I'm waiting for the team to ring me back hopefully maybe they can give me support thanks fir suggesting that

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,720 Championing

    how does it feel to finally have a diagnosis?

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 193 Empowering

    I'm with you , I finally got my diagnosis last October and have profound hearing loss , I was given hearing aids the bud type , but today I am going for moulds for a different type .

    I still struggle to hear people speak and need to be pretty close to hear them ,I was also diagnosed with severe obstructive sleep apnea which i have read is also related to hearing loss , It is a struggle but once you know what the issue is you kind of accept and try to carry on best you can .

    I was fine with the hearing loss until I had a near miss with bike and car as i don't hear them approaching , now I am constantly looking behind me , and so is my husband who is also my carer .

    My hearing will get worse , I know a bit of sign language and I learn by signing to songs , it makes it fun .

  • Neffinoo
    Neffinoo Online Community Member Posts: 8 Listener

    I struggle so much every day. I too have had issues with vehicles. Throw into the mix that my partner's speech is severely affected by his disease.... he can't speak properly and I can't hear him it makes for interesting conversation!!! What frustrates me the most is when you tell people that you are hearing impaired and they then speak to you like you are stupid!!

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,720 Championing

    please note that you are definitely not stupid I think you are brave for opening up about your struggles and that shows commitment

  • Neffinoo
    Neffinoo Online Community Member Posts: 8 Listener

    That is kind of you to say that. Deafness does not mean stupid. It is a disability, it does make life harder for those of us who are hearing impaired. I was able to get a disabled bus pass with help from the Sensory Impairment Team, this has helped me so much as I cannot hear what the driver says. Does anyone else find that their hearing aids unfortunately pick up traffic noise to the extent you struggle to understand conversation even more than usual??

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,720 Championing

    thank you

  • Neffinoo
    Neffinoo Online Community Member Posts: 8 Listener

    Sorry, I meant to say whilst actually in your home as I live on a busy road!!

  • charl1234
    charl1234 Online Community Member Posts: 216 Empowering
    https://forum.scope.org.uk/discussion/comment/1016390#Comment_1016390

    Like I'm finally not stupid! I don't know why but that's how I felt just another thing to try get my head round I'm scared of losing my hearing totally also daft maybe xx if I'm in a busy place I miss so much of a conversation and people have got mad with me like I'm ignoring them

  • Neffinoo
    Neffinoo Online Community Member Posts: 8 Listener

    You most definitely are not stupid!! I too have felt the same for most of my life, I have lost count of the times I have been accused of ignoring someone when I didn't hear them speak to me. Never feel that you are stupid, even if people try to make you feel that way.

  • Holly_Scope
    Holly_Scope Posts: 1,909 Scope Online Community Coordinator

    Hi @charl1980 I hope you're doing ok? I've added a few links which might be helpful. The first has an area for support with Benefits, but both charities cover a wide range of services.

    Best wishes,

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