At the top of the waiting list

sunshine1981
sunshine1981 Online Community Member Posts: 244 Empowering
edited May 7 in Autism and neurodiversity

I've been told I'm at the top of the waiting list for an assessment now.

Because of the proposed changes to welfare benefits, which I claim for multiple things, I'm a little unsure whether to go ahead with getting a diagnosis now.

I want the diagnosis because hopefully it will open up doors for support and if the proposed changes do come in it will help me to get a suitable job when working with the government.

But on the other hand will it go against me for PIP?

Do I need to mention it to PIP?

Could I carry on my PIP claim without this being included or do you have to tell them everything you are diagnosed with?

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Comments

  • Wibbles
    Wibbles Online Community Member Posts: 2,574 Championing

    Yes - you should go ahead with your assessment - it is the only way that you will discover the reasons for your problems

    It may also assist you in your PIP claim - if you add copies of your assessment notes to your claims form.

  • sunshine1981
    sunshine1981 Online Community Member Posts: 244 Empowering

    But I'm concerned, they are against anyone with autism/ ADHD/mental health.

    Would I be in trouble if I didn't mention it on my PIP review?

  • sunshine1981
    sunshine1981 Online Community Member Posts: 244 Empowering

    Can anyone answer me this please

  • Wibbles
    Wibbles Online Community Member Posts: 2,574 Championing

    you need a decent GP report to start start with which will cover everything .. it's stupid trying to hide your ailments

  • Mary_Scope
    Mary_Scope Posts: 1,513 Scope Online Community Children and Family Specialists

    Hi @sunshine1981 it is best to be open and honest in the pip assessment and diagnosed conditions can sometimes hold a bit more weight depending on the assessor (even though PIP should be done purely on how your condition effects your day to day)☺️

  • sunshine1981
    sunshine1981 Online Community Member Posts: 244 Empowering
    edited May 9

    I plucked up the courage to go somewhere today with a group of people from a mental health club I'm in. I've never done anything like this before. I wore my ear plugs but after 2 hours I had to leave, I'd already gone outside twice but I couldn't cope with the noise, people talking to me all the time and having to listen, concentrate and then talk back. I was getting so worked up. Then I was really snappy with my partner on the way home about nothing but I made it an issue. I needed to be quiet and reset.

  • Rosie_Scope
    Rosie_Scope Posts: 5,672 Scope Online Community Coordinator

    Hope you can rest and reset today, @sunshine1981 it must have taken a lot to go along to something new and stay so long πŸ’›

  • sunshine1981
    sunshine1981 Online Community Member Posts: 244 Empowering

    Today is the first day that I've not been absolutely shattered since last Friday, I think it was all the effort it took me to go out with my club. I now have my assessment date for autism and I'm really worried, I just don't want my other diagnosis to be changed or challenged.

  • Holly_Scope
    Holly_Scope Posts: 2,227 Scope Online Community Coordinator

    Hi @sunshine1981 I'm glad you're feeling a bit better. When is your assessment? Hopefully it's not too long in the future. Please be good to yourself and take it easy whilst you're going through a lot πŸ’›

  • sunshine1981
    sunshine1981 Online Community Member Posts: 244 Empowering

    First week in July

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