Reactive Hypoglycemia

jane52
jane52 Online Community Member Posts: 78 Contributor

Does anyone have reactive hypoglycemia as one of their health issues. If so, do they get any support from NHS. I pay to see someone privately from time to time. G.p. practice says they do not cover it. Wondered if there was any NHS support as well as private.

Thank you Everyone

Comments

  • jsjswood
    jsjswood Online Community Member Posts: 10 Connected

    I have reactive hyperglycemia, but I've never had it diagnosed by the GP. I just know i have it because I looked it up on the Internet. There isn't a cure for it. I buy glucose tablets and have one one i feel like my legs are a bit wobbly

  • jane52
    jane52 Online Community Member Posts: 78 Contributor

    Thank you jsjswood. I make sure I eat regularly Found glucose tablets did not work for me , made me spike too much, so managing it with diet. Carry some electrolytes with me which are ok, or nuts. Would like to get better control of it as can pass out with it when out walking at times, Was hoping NHS might have support. If not will need to stay with private. Thank you for responding

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    Hi @jane52 I have reactive hypoglycaemia. This is long sorry but hopefully there might be something that's relevant or helpful for you. I've not spoke to my GP about it but I am pre-diabetic. However, it is important to try to determine the cause ie whether its non-diabetic hypoglycaemia or not.

    Has your GP checked your bloods for hBa1C to see if you're diabetic or pre-diabetic?

    I don't know how to link here sorry but if you Google 'Non diabetic hypoglycaemia, Fahad, 2023' that is an interesting article and might give you some pointers.

    My RH is post-prandial and always occurs c 3hrs after eating and it comes on suddenly with shaking, weakness tachycardia, sweating and I have to get a sweet drink then a snack straight away. Unfortunately, I have to eat mostly white food because of other health problems which is most likely why I get the RH, so the more complex carbohydrates that would help, and high fibre I can't eat very often or enough.

    I am also on beta blockers for my heart and that's a drug that can affect RH, so can other drugs like Lithium for example (often used for treating bi-polar).

    If you Google 'South Tees Hospital Reactive Hypoglycaemia' and 'North Tees Hospital Reactive Hypoglycaemia' that links to very informative leaflets but mainly how to treat it and prevent it (self management).

    I don't have a blood sugar monitor and don't particularly want to get one; when I was very unwell two years ago, paramedics checked my BM it was 2.8 which is very low and had to give me 3 Glucagel tubes to get it up to normal level.

    Your post has reminded me I should look at those Links above to see where I can improve my management of it! I am slightly overweight too/BMI not great and too little exercise.

    Does your GP practice have a diabetic nurse? Whether you see them, or your GP, a check of your blood pressure, height, weight, BMI (body mass index), and blood test for the hBa1c which measures your blood sugar level should be a good starting point.

    I think when it's non-diabethc related it's then often from either fasting, post-prandial (after eating, usually 2-4 hrs after) or exercise related but that doesn't mean it shouldn't be checked. The Fahad article/research is a very useful read.

    Finally I think most NHS guidelines on it relate to self-management (complex carbohydrates, high fibre, exercise, low dietary intake of meat/fats/dairy/alcohol) but I'd personally recommend you seeing your GP for checks, as above. Wishing you all the very best. PS I am a nurse, well, I was until I came off the register in March because of my ill health and not a specialist in diabetes. Diabetes UK website is very informative too. Take care 😊

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    Thanks so much for posting the links @chiarieds I don't know why I can't seem to do it !

  • egister
    egister Posts: 1,028 Pioneering

    blood glucose concentration 2.8 is very dangerous. You definitely need to have a glucometer with you and teach your loved ones to use it. Or, if you have a dog, train it to sniff out drops in your glucose level.


    C5H8 gas analyzers are not very available yet.

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    Thank you very much @egister and for posting the video which I've watched. Very much appreciated! I can't remember the name now but I've just found a company in Kentucky, USA that have a free online book re training which I've saved on 'phone following getting your message.

    Yes, 2.8 is dangerous; it turned out I had Covid (for the third time). I'm not diabetic but have to eat every c 3.5 to 4 hours. I have no loved ones to teach apart from my 4 daft dogs 🤣, they are 3 shih tzus and a Yorkshire Terrier, none particularly motivated but at 8 and 9 years old, I get it 😀. But still worth a try!

    Thanks again, I have a needle phobia too but Jane's original post served as a timely reminder I need to manage my hypos more effectively (I have other heath conditions that precipitate it 🙄). But there's always more to do I'm sure. Take care and thanks again to you.

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    The book was by a company called M.D. Dogs, based in Kentucky, USA called Diabetic Alert Dogs/Selt Training, for anybody interested.

    Sorry, don't know if I'm allowed to state that - I'm not recommending/don't know them. If not allowed Scope please feel free to remove and my apologies 🙂. Thanks!

  • egister
    egister Posts: 1,028 Pioneering

    Diabetic Alert Dog Training Steps

    Diabetic Alert Dog Training Steps
    1st edition; English translation; 107 pages. Thanks to Margaret G Jacobs Charitable Trust for enabling this to be available for free to the public.

    ??

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    Thank you - just checked and yes, it is this one. It recommends to read on a desktop etc, I've not read it yet but looks difficult on a mobile phone.

  • egister
    egister Posts: 1,028 Pioneering

    I just happened to have a pdf file of this free book. Can I post it here?

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    Oooh thanks, that would be good if it's allowed.

  • Holly_Scope
    Holly_Scope Posts: 2,529 Scope Online Community Coordinator

    Hi @egister. I'm not sure we can allow it as a book that is not readily available free to download I'm afraid. Sorry.

  • egister
    egister Posts: 1,028 Pioneering

    Hi!

    It is not clear. What a person sees in the browser is already on his computer (smartphone), otherwise he would not have seen anything - that's how the Internet works. And the owner of the Internet site knows this. Moreover, in this case the owner directly indicated the free use of this book.

  • Santosha12
    Santosha12 Online Community Member Posts: 1,255 Trailblazing

    So sorry I wasn't trying to complicate things, I can just print it off on my printer. Thanks for your help though 👍