Hi to all

amazingblazing628
amazingblazing628 Online Community Member Posts: 91 Contributor
in Everyday life

Hi there

I have been for my pre assesment today for more botox in my bladder on friday.

I have also been to Sheffield hospital in July I will be have my bladder removed in Dec if not before so will need a urostomy or bladder diversion done cannot wait for this spc to be removed worst thing ever.

Amazingblazing628

Comments

  • Banarama123
    Banarama123 Online Community Member Posts: 74 Empowering

    hi. May I please ask what are you having your bladder removed. The reason I ask is because I suffer multiple utis due to a mesh which I had in 2008. I am awaiting bladder instillations.

  • amazingblazing628
    amazingblazing628 Online Community Member Posts: 91 Contributor

    Hi to all,

    I am having my bladder removed due to having an spc in place I cannot cope with the spc constantly sore and leaking urine all over my clothes have to cover it and still get very wet cannot cope with this.

    Just cannot wait for the op

    If you read my previous posts you will see why.

    Amazingblazing628

  • amazingblazing628
    amazingblazing628 Online Community Member Posts: 91 Contributor

    Hi to all,

    I wouldn't have the mesh i read where its very painfull to have in they offered i refused to have it done so they used my skin instead.

    Amazingblazing628

  • figraspberry41
    figraspberry41 Scope Member Posts: 143 Empowering

    Hi #Amazingblazing 628,

    It sounds like you have reached a considered decision for your circumstances. I'm not sure how much benefit you have from Botox treatment (outside my nursing experience). However, I do recall you having a long term history of difficulties and problems with a Supra Pubic Catheter and from my nursing experience, I am familiar with the common problems these catheters cause some people. At least with a urostomy (or ileal loop) you will be able to manage the collection devise without the difficulties of being uncomfortable from a blocked or leaking catheter.

    Hope it all goes well for you Friday and you get to have your surgery soon. I can imagine how miserable and distressing it is to have your experience. I have had many patients with similar problems and yes, I even had a Supra Pubic Catheter my self all be it very briefly. Take care.

  • Rosie_Scope
    Rosie_Scope Posts: 7,006 Scope Online Community Coordinator

    Sorry you've had such a horrible time with your SPC @amazingblazing628, I hope the team can get you seen quickly so you can feel more comfortable.

    Good luck with your botox appointment on Friday, hope it goes okay ☺️

  • amazingblazing628
    amazingblazing628 Online Community Member Posts: 91 Contributor

    Hi to all,

    Thankyou to all of you for your messages very considerate of you all I will let you know how friday goes and when I have my operation done.

    Amazingblazing628.

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,351 Championing

    thank you for keeping us all updated

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