Every Medication Failed so far
I think my crohns is starting to flare again, as been in quite some discomfort and pain the past week. But I'm without medication as everything has failed so far to work. Over the years I have tried various medications such as Pentasa (didn't work), azathioprine (which damaged my liver), adalimumab (which worked briefly but I built up antibodies to), Infliximab (which I had a severe allergic reaction to) and then recently tried ustekinumab which again badly starting damaging my liver so had to stop.
Since being diagnosed with crohns over 12 years ago when I was 18 I have had 8 Surgeries for it, have had 2 stomas (Had it reversed and had to have it again after falling ill again), had multiple fistulas which were so painful and I couldn't walk for like 2 years becuase it was touching a nerve that went down my leg.
I'm just scared theres no end. I have been battling this horrible disease my whole life and roughly have a flare up every 8 months upto date which mostly ends up in a hospital visit and a high dose course of steroids to settle it. I am now worried that I have exhausted most options when it comes to medication as the most recent medication I tried was brand new and only just got funding for it.
Comments
-
Feeling so ill and depressed today. I'm just so sick and tired of this endless battle. I can't do anything with this constant ache and sickness feeling. Everytime I try eat something the ache gets worst.
Everytime I think I am improving or getting better I fall ill again, its always like 2 steps forward, 5 back again. At what point does a person just stop wanting to fight and just give up. I'm just tired of fighting.
0 -
Sorry to hear you're going through this @rubin16. It sounds like you have been through an awful lot and are it's still continuing so its understandable why you're feeling like this.
A member of the team is going to pop you over an email soon so please keep an eye out for it.
0
Categories
- All Categories
- 15.6K Start here and say hello!
- 7.4K Coffee lounge
- 103 Games den
- 1.7K People power
- 149 Announcements and information
- 24.6K Talk about life
- 6K Everyday life
- 462 Current affairs
- 2.5K Families and carers
- 887 Education and skills
- 1.9K Work
- 553 Money and bills
- 3.7K Housing and independent living
- 1.1K Transport and travel
- 630 Relationships
- 1.5K Mental health and wellbeing
- 2.5K Talk about your impairment
- 873 Rare, invisible, and undiagnosed conditions
- 934 Neurological impairments and pain
- 2.2K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 40.8K Talk about your benefits
- 6.1K Employment and Support Allowance (ESA)
- 20K PIP, DLA, ADP and AA
- 8.9K Universal Credit (UC)
- 5.8K Benefits and income
