Shocking behaviour towards a person with disabilities

InvisibleDisabled777
InvisibleDisabled777 Online Community Member Posts: 1 Listener

Hello. Just wanted to share my recent encounter of the situation, where I was mocked and made fun of because of my disabilities.

I am 40 smthg single female, divorced 3 years ago, raising an 8 y.o. daughter. I have multiple neurological, physical and mental health conditions, most of which are invisible but are very disabling. I have even been awarded PIP due to it 5 years ago. I require assistance of another adult to manage my daily living and mobility tasks. My marriage fell apart due to it.

Sadly, since birth my daughter had serious mental health issues, which started with something as minor as severe separation anxiety. However, in the last 6 years, due to CAMHS repeatedly rejecting numerous referrals from GPs, paediatricians, Early Help practitioners, school representatives, claiming that her state doesn't meet their threshold. As a result of that, my daughter developed severe generalised anxiety, possibly even ADHD and potential autism spectrum traits. However, due to constant rejection of CAMHS, there is no official diagnosis of her state by medical professionals. However, poor child is unlucky to have a lot of psychosomatic symptoms of her mental state, such us frequent nightmares almost every night, unexplainable high fever spikes, various body pains, which go away within 24 hours. These things have been affecting her school attendance since reception year. On top of that she has a couple of physical health conditions which affect her existence all year long. It took years of GP referrals to finally be seen by Paediatricians to review these issues. However, since she still too young to undergo full medical examination, the doctors did not issue the actual diagnosis, and most importantly, they did not put the exact wording in the letters, that these conditions are likely to affect her ability to attend the school. I have been continuously trying to chase them up about it, however, my numerous communications with the secretaries of those paediatricians are still not in a process.

Due to that, my daughter's case has been escalated to Child Protection Social services and, after various engagements with Social services representatives, the Conference meeting has been arranged in order to place my daughter under Child under protection plan, based on the Neglect of parental side by obstructing het from getting her right of education. As my daughter lives with me, I am being blamed for fabricating and exaggerating her illnesses without reasonable medical proof.

I have always been cooperating closely with all Social services representatives, because I most definitely do not have intentions to harm my child in any way, quite the opposite, I am trying to prevent her to have to go through all the hardships that I had to go through as a child, because she has all the same health issues that I did, when I was a child.

When conference meeting happened two days ago, I was more than cooperating and understanding with most facts raised by Social services workers, as I do understand clearly the negative affect my disabilities have on my child's wellbeing. However, once they started shifting all the blame on me for exaggerating everything, including my own health conditions, which have all the possible medical prove, and mocking me for stating a simple fact that getting to hospital appointments by myself is extremely difficult task for me, they just laughed at me and suggested me to try harder and not to make such a big deal out of nothing.

On a daily basis, just because I am trying my best possible, I am constantly doing things, that put my life at a great risk, just in order to be more capable for my daughter's needs and wellbeing, which always comes at a high cost of having to be stranded in bed for 2 or 3 days continuously, being unable to get up from bed and function at all both physically and cognitively.

I do not deny that under serious stress situations like that I am struggling to control my emotions and I keep on standing firmly on my opinion no matter what, even raising my voice while communicating and talking over other people.

But I can not accept the fact that relevant representatives taking part in these conferences can allow themselves to openly humiliate me and even blame me in over-exagerating my own health issues and, as a result, forcing my child to think that she has health issues which are not actually real. I am still in enormous shock after having to experience such disrespect and unbiased accusations.

My question really is, am I really over-reacting to this situation and am I really wrong trying to protect my child from unnecessary harm to her already very difficult health situation.

Comments

  • Community_Scope
    Community_Scope Posts: 2,005 Scope Online Community Coordinator

    Welcome to the community @InvisibleDisabled777

    I'm sorry to hear you were mocked and made fun of, that isn't on at all!! Thank you for being so open and honest, it sounds like a stressful situation. We're going to pop you an email in a while so please look out for it.