Dementia - CHC (continuous health care) Funding

oasis63
oasis63 Online Community Member Posts: 14 Listener

Hello everyone

My mum has vascular dementia and has been in a care home for three years. She's quite well advanced and has been double incontinence for at least two years although she can still walk in a kind of shuffle but can't really have a conversation even though she can still talk and understand things to a degree. It's one word here and there and she's always confused and heavily medicated.

I want to look into getting funding for her under the CHC and wondered if anyone has had any experience of this please?

There is a company called Compass CHC who advertise on TV stating they can pursue claims on behalf of dementia sufferers for continuous health care Funding. Has anyone any experience with this company? I've read reviews on Trustpilot fur then and they're really good but I never know if I can trust reviews or not.

Any advice will be gratefully received.

Thank you

Comments

  • Kimi87
    Kimi87 Online Community Member Posts: 7,650 Championing
    edited November 12

    CHC is really hard to get for anything, dementia would be extremely difficult as it is considered a social care need rather than nursing/medical need.

    In my opinion nothing about your Mum's symptoms would reasonably require nursing care.

    She's mobile, needs toileting help & help with personal care. None of those are medical needs.

    I'd recommend speaking to an independent organisation such as Age UK, before you consider handing over any money to this company.

    https://www.ageuk.org.uk/services/age-uk-advice-line/

  • oasis63
    oasis63 Online Community Member Posts: 14 Listener

    Thank you. I'll give them a call. You're right, my mum doesn't need nursing care at the moment. She needs help with every aspect of personal hygiene and without the carers she wouldn't survive as she can't cook or do anything unaided really

  • Santosha12
    Santosha12 Online Community Member Posts: 3,022 Championing

    Hello @Oasis63, I don't have experience of the company you've mentioned. I looked after my mum who had vascular dementia, Alzheimer's Disease and two cancers for nearly 8 years (she was in a care home for three years prior to passing away in December 2022).

    I never applied for CHC funding for my mum; I am/was a nurse and I applied for it for 6 residents at my care home in c 2019 and 2020. All were nursed in bed, all had dementia and many other co-morbidities and only one was awarded CHC. My Home Manager was amazed I secured it for even one person but of course, it made a difference for them and their family.

    It might help to look at the Domains for CHC, I think they're still listed on Dementia UK website. It is notoriously difficult/nigh on impossible to secure CHC funding for dementia but still worth exhausting each possibility. Dementia UK also have a helpline if it might help you to speak to somebody to get more information.

    My very warmest wishes to you and your mum.

  • Biblioklept
    Biblioklept Online Community Member Posts: 335 Empowering

    @Santosha12 what kind of things fall under 'nursing' to qualify for CHC funding? I hope you don't mind me asking you. I think nursing, especially in a care home, must be so difficult (and rewarding) and you have my highest respect!! ❤️

  • chiarieds
    chiarieds Online Community Member Posts: 17,179 Championing
  • Santosha12
    Santosha12 Online Community Member Posts: 3,022 Championing

    Thank you very much Biblioklept; I do not mind at all and it was the most rewarding of all care that I'd provided in my 13 years of nursing, with 3 years solely dedicated to end of life/palliative care, the training for the latter of which I 'self-funded' to the tune of c £2k (absolutely no regret there from my point of view). In addition to the patients I cared for, I also was lucky to be able to provide that care for my lovely mum who passed away on 5th Dec 2022.

    If, in my [only] 13 years of nursing (significanly less in duration than many others but only stopped in its' tracks through Covid) , I was only instrumental in securing CHC funding for one patient, I would say, with humility but with some pride - if both can indeed exist alongside each other - that whatever the costs involved in my initial nurse training were, they were not only well worth it for that one patient and their family but all of the patients I cared for, always with diligence and compassion. I can remember them all. That's what I'm 'proud' of.

    There are four characteristics which are tested to establish a primary healthcare need which are nature, intensity, complexity and unpredictability. These are each applied to each domain which are, for nursing care, breathing, nutrition, continence, skin, mobility, communication, psychological and emotional needs, cognition and behaviour, drug therapies and medication and altered states of consciousness. I learned these 'inside out' and very many of my patients not only, very sadly, fully met the criteria but were not awarded CHC. It is a postcode lottery. Not trying to make this 'political' at all, but it's something like an increase of 40% since 2021 of folk who do not qualify for CHC.

    Forgive my cynicism. I nursed many people with dementia alongside many other co-midities. These included several patients who were bedbound, not just because of dementia but MS, Parkinsonism and other life changing conditions including traumatic brain injury. Most did not qualify for funding, even though they should have.

    IF there is only one reason I am 'glad' to no longer be on the nursing register, because of my poor health, it is because of the health inequity that still, appallingly, exists; that doesn't belong in one of the most wealthiest countries in the world. I am, of course, not 'glad', nursing was/is in my DNA and now has nowhere to go.

    Sorry - as usual, a lot more information than you asked for!

  • Biblioklept
    Biblioklept Online Community Member Posts: 335 Empowering

    Thank you so much @Santosha12, that was so helpful!!!

    Honestly I can't believe how much care homes cost, I'm ashamed to say I never really considered it before and I am in shock and appalled that anyone is expected to foot that sort of cost!!! Or that it costs that much at all!

    The staff do an amazing and very difficult job, but the money doesn't seem to go to them, so I really don't know what they charge so much for!!!

  • Kimi87
    Kimi87 Online Community Member Posts: 7,650 Championing
    edited 12:19PM

    Social care staff across the spectrum are certainly undervalued and underpaid, most care homes are run as profit making businesses.

    The expensive costs are why people who can't self fund can struggle to get their local authority to fund a placement.

    Legally needs are supposed to be assessed then finances, in reality local authority will fish for information, plus if someone is assessed as needing carers in and later really needs a care home, the financial assessment will have been completed and the LA will know full well the person cannot pay for residential care.