Dying

My brother brother was born 71 years ago with the umbilical cord wrapped tightly around his neck. Thus resulted in catastrophic brain damage, mild LD and CP. Despite predictions to the contrary, Edward learned to walk and talk, read and write.
When mum and dad died Edward had to go into supported living where he was consistently abused and or neglected. Despite our best attempts we could not get him anywhere to live closer to us which resulted in 20 years of me and my husband constantly battling social services and having to resort to damage limitation situations. For the last four years Edward has been subjected to the worst neglect and dereliction of care which has resulted in him being hospitalised for the past two months. He is now being “nursed in bed” at the local Community Hospital and his muscles are deteriorating to the extent that he can no longer feed himself, his breathing is becoming laboured whilst eating and drinking and he is unable to get to the toilet. His current care is outstanding and delivered with compassion.
I would be very grateful if anyone can share with me their experiences of someone with LD and CP in their final months. I have no idea what to look out for or how to help him and whilst the nurses are wonderful they are not specialists in CP.