Really Not Happy

amazingblazing628 · February 9

Hi to all,

I was supposed to be having botox on 17th of febuary now not happening because of my A1c test for blood sugar is 1 point over so now i have to wait to have another test before i can have the cytoscopy and botox but i am still bleeding constantly into my urine bag and doctors/hosp is doing nothing about it at all until i have another cytoscopy when my bs sugars R down more i have loadz of pictures of blood in urine bag and my Spc site is Really Sore Inflammation and they wont give me Steriod tablets to clear my skin up its horrible.

GalDriver · February 9

I hope you get this resolved soon.😞

Kimi87 · February 9

Please try your GP again, and mention Jess's law.

https://www.gov.uk/government/news/life-saving-jesss-rule-to-be-advertised-in-every-gp-surgery

Have you tried making a formal complaint at your Hospital? PALS organisation can assist if needed.

https://www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

Rosie_Scope · February 9

That sounds really sore @amazingblazing628, I'm really sorry you're suffering so much. Could you ask for a second opinion at all?

Kimi's links are definitely worth exploring too if you can manage it.

I hope things start improving for you soon. Keep us updated!

amazingblazing628 · February 9

Hi there,

Where do i find Kimi s links.

Amazingblazing628

amazingblazing628 · February 9

Hi to all,

I have a lady called Emily who is my advocate who ive been contacting for advise but dont think she can do anything about this.

She can only do certain things.

Amazingblazing628.

Kimi87 · February 9

If you click on the purple text in my previous post, those are the two links I posted.

Rosie_Scope · February 9

They're just above my post @amazingblazing628 but I'll include them here too:

One is for Jess's Rule: https://www.gov.uk/government/news/life-saving-jesss-rule-to-be-advertised-in-every-gp-surgery which is about asking your GP to have a look with 'fresh eyes' to see if there's anything more that could be done for you.

And the other is for PALS who help with concerns or problems when you're using NHS services: https://www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

Really Not Happy

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