Cystic Fibrosis Trikafta Review?

HelloYes · March 10

Hello

I hope you are doing well.

I was wondering if anyone who has tried Trikafta has any feedback or experiences to share? Was it truly life-changing as advertised, or did it really help you?

Thank you so much!

chiarieds · March 10

Hi @HelloYes - I don't know if you've come across the following: https://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/cystic-fibrosis-care/treatments-and-medication/modulators/kaftrio

Kaftrio is called Trikafta in the USA & it won't be suitable for everyone, so, as ever, be guided by your specialists. Some experiences here: https://www.cysticfibrosis.org.uk/sites/default/files/2024-08/Kaftrio%20-%20complex%20and%20invidual%20experiences_August2024.pdf

I hope some of this helps.

HelloYes · March 10

Thank you so much. Yes, sometimes I am not sure if everything is just overglorified, as it is a pharma product and maybe even paid by the big pharma companies. So I was wondering if anyone had any experience with it.

chiarieds · March 10

You are very welcome @HelloYes - there are always questions, & I hope you can work with your specialists, & do ask for their opinion.

Mary_Scope · March 11

Hi @HelloYes and a warm welcome to the community from me!

It's lovely to have you here and I hope you enjoy your time on the community😊

Cystic Fibrosis Trikafta Review?

Comments

Categories