Message for Jonf

StarryEyed
StarryEyed Community Member Posts: 1,891 Championing
in Coffee lounge

Hi @jonf !

Since you're rarely on the forum, you may not know that for quite some time there have been technical problems with the private messages. The day you sent me a message in our conversation, I left the conversation by mistake (as has happened to you before). It's because the "send" and "leave conversation" buttons are side by side. Because of the current technical problems on the forum, no one is able to start new conversations, so that is why I have not responded yet. They do not know when this can be fixed. I hope you're well. Hopefully we can chat again soon! 😊

Comments

  • jonf
    jonf Community Member Posts: 464 Pioneering

    hi


    I did not know


    I am struggling as now diagnosed type 2 diabetic


    what next

  • jonf
    jonf Community Member Posts: 464 Pioneering

    Will try to explain.


    had a blood test or rather having one every week because of liver problems showing. Today is yet another blood test and fibro scan. My GP has decided that I am diabetic. Seriously someone up there please give me a break.

  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing

    Hi Jon! It's been a long two weeks since hearing from you! I'm so sorry to hear the bad news of yet another health challenge! You have so many hoops to jump through! 🥺 Is it possible the diabetes is due to your steroid treatment? If that's the case, weaning off the steroids might reverse the diabetes.

  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing

    Hey @jonf

    I've been getting all your messages, but can't respond because your profile is set to private. Thanks!! 😊

  • jonf
    jonf Community Member Posts: 464 Pioneering

    I don’t know how. Let me see what I can do.

    Any advice anyone???


    There was an error displaying this embed.
  • jonf
    jonf Community Member Posts: 464 Pioneering
    https://forum.scope.org.uk/discussion/comment/1120762#Comment_1120762

    today they have decided as well as taking Metformin that I am required to attend hepatology asap. Any other **** this world can throw at me

  • snuggles65
    snuggles65 Community Member Posts: 163 Empowering
    https://forum.scope.org.uk/discussion/comment/1108906#Comment_1108906

    Same for me jon, I have type 2 diabetes having trouble with liver also keep having blood tests. Fibromyalgia icing on the cake.

    Hope you feel better soon x

  • jonf
    jonf Community Member Posts: 464 Pioneering
    https://forum.scope.org.uk/discussion/comment/1120846#Comment_1120846

    on top on rheumatoid arthritis and i was involved in a very serious accident. At least i will be out of my exoskeleton by August and only need a stick for gentle support.

  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing
    edited April 24

    Gawd Jon, your health just keeps getting worse!! I'm so sorry. @snuggles65 sorry you're struggling too. Fibromyalgia and diabetes is a dreadful combo.

    To make your profile public:

    Step 1. Sign in to the forum, then click on your profile pic at the top right (circled in red):

    1000061908.jpg

    Step 2. On the popup window, click "Account and Privacy Settings" (circled in red):

    1000061904.jpg

    Step 3. Under "privacy" settings, check the box "Display my profile publicly" (circled in red):

    1000061906.jpg
  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing

    Hi Jon. I got your message. Your account is still set to private. Maybe you could email community@scope.org.uk to ask for assistance?

  • jonf
    jonf Community Member Posts: 464 Pioneering

    I think we are working again at last

  • jonf
    jonf Community Member Posts: 464 Pioneering
    https://forum.scope.org.uk/discussion/comment/1120846#Comment_1120846

    let’s just say I am fortunate to be alive. Him up there clearly has plans for me.

  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing

    Good morning, Jon. Yes, your profile is now visible, so we can share in the activity on our profile, but I think that's public. So we might as well talk here? I do miss our talks on the private messages. Anyway, forward march.

    Did you see the thread about CP and exoskeletons? Maybe you can help others? Maybe that's something worthwhile for you to have survived?

  • StarryEyed
    StarryEyed Community Member Posts: 1,891 Championing

    Here it is, Jon…

    https://forum.scope.org.uk/discussion/146795/exoskeletons-for-people-with-cerebral-palsy-are-now-a-reality
  • jonf
    jonf Community Member Posts: 464 Pioneering


    just wish that I had known about this years ago.

    https://forum.scope.org.uk/discussion/comment/1120846#Comment_1120846
    IMG_4811.jpeg
  • jonf
    jonf Community Member Posts: 464 Pioneering

    I need a brain update and defragmentation of what is left.

Categories