My Dad died and I'm despairing
My Dad died 48 hours ago after five weeks in hospital. Cancer. But it was more traumatic because we thought he was early stage and it turned out he was end stage, so we were working towards getting him discharged, and instead he went downhill fast just as we thought we were close to this goal. That was so hard. It's like he was snatched away from us just as we were going to get him back.
I am completely heart broken and spiralling. He and I had been distant for years and struggled to connect in my adult life because of my late diagnosed autism, and my tendencies expressing themselves more strongly as I got older. The thing is, he was autistic in some way, as well, but this didn't create common ground for us, it created friction. That is a complicated story that I won't go into, now. I will just say that over the past six months there had been a thaw in the ice and our relationship was beginning to reset. Then, when he went into hospital a month ago, it began a deeper reset and I spent a couple of weeks building him a convalescence room in the spare room, and visted for hours every day, and spent a lot of time talking to nurses and doctors to try to keep things moving and motivate progress: to advocate for him, because he was always bad at advocating for himself.
But now he's gone, and it was so hard. They never got around to taking a biopsy (which we pushed for, but mistakes were made which kept causing delays and his fitness declined too much). We were with him for his last night, right to the end, even then having to argue for him because we knew he was dying and needed the "good" drugs that only hospices use, but the staff still thought he might recover and be discharged!
He spent five weeks on a ward, in that noise and discomfort, constantly sleep deprived, constant discomfort on those horrible mattresses, dealing with infection induced by an endoscopy (whoch they did instead of the biopsy, and because of the infection, they could never go back and biopsy).
He spent all those weeks in that hell, not at home or at least in a hospice, and I feel so horrible and desperately sad for him that this was how he spent his last weeks. And I feel so guilty because I took him in to hospital, but I never brought him out! I never brought him out. And I couldn't protect him from the mistakes they were making. I tried! But every day it was a new doctor, never any continuity of care, and I had to start again with that new doctor.
He went in and he never came out, and I've lost my dad just as we were getting back together and I'm so utterly broken and frustrated and desperate. I need him more than I knew, and for so many years I pushed him away, and just as this started to change, he was stolen! He was taken away!
I need help but I don't know where to go.
Comments
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I'm so sorry to hear about the death of your Dad. I can see you were rebuilding your relationship as adults, so to lose him whilst you were getting closer is going to throw up all sorts of emotions. Remember you are at the very early stages of bereavement, so it's important to be kind to yourself and keep talking to family, friends or a bereavement organisation.
If you find it easier to write things down, as you have done here, that's okay as well. Seeing your emotions on paper or a forum helps to release a lot of stuff we are carrying.
You've reached out to this community, so you're not alone.
I was a bereavement volunteer and these organisations can offer all types of emotional support, so it might be worth contacting them.
Mind Bereavement Organisations in the UK. I've included a link to a number of organisations in the UK.
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Hi @Commanded2bwell I am so very sorry for your loss. I am sure it must feel so much worse because you do not feel he got the treatment and dignity he needed in his last days.
You took him into hospital because you thought it was the best place for him to be, please do not blame yourself for him not coming home again.
The following link might be of interest to you.
Anytime you would like to talk about how you are feeling we are here for you.
Please take care of yourself.
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Aw man I'm so sorry about your Dad! My own Dad's got Dementia and he's 77 and I'm worried about his health, plus Dementia does run in the family, my Nan had it and she's been dead 10 years in September, and my Uncle's partner died recently, she was in her late 80s.
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I'm so sorry for your loss and all you've been going through @Commanded2bwell. Please, please don't be hard on yourself. Reading your post it's clear to see that you fought for your Dad continuously throughout this really difficult time.
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not much moves me any more but i feel your pain @Commanded2bwell that was so raw and real
Remember he went knowing you loved him and cared, all the other **** doesnt matter at the end, you were there and he would have known that and loved you all the more for it
stop blaming yourself and focus on the good times and healing you got to do the last few months
it feels cruel for him to be taken when you were rebuilding, but at least you have these recent times to cherish. im still lost without my dad, the pain changes and gets easier to live with
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Sending you lots of love @Commanded2bwell, I'm so sorry you lost your dad in such difficult circumstances. It sounds like you did everything you could and were looking out for him right until the end, so please try not to blame yourself for how it happened. The community is here if you need to chat about things 💛
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Oh im so sorry for you when your dad needed you was there i felt every word you wrote in an ideal world we would have a perfect family relationships but i hope oneday you can get comfort from knowing you was his voice and spent that time with him as painful as it was you was by his side im preying for your days to be managable we are here for you
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