Mums teeth dropping out
My mum is 87 and has Alzheimers. She lives in a care home and her teeth are in a terrible state and falling out one by one. I suspect neglect but the home manager says she resists having her teeth cleaned by them so much that it becomes impossible to do it. When action would you take? I know dental care is not free unless you get pension credit (she doesn't). Should I ask the home to pay for dentures as they have caused the problem?
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Hello @cattleandcane23,
Please excuse the length of this, it could be long...... I hope some of it might help.... (I'm a former nurse and poor oral hygiene was inexcusably widespread and managing it well a challenge but essential for the wellbeing and comfort of patients, especially those with Alzheimer's/dementia). I'm sorry if your mum has not been receiving good oral care, tooth loss is really unpleasant at any age. Also cared for my own mum including whilst she was in a nursing home with Alzhimer's Disease, vascular dementia and cancer.
Do you mind me asking firstly if you've been able to talk to your mum about it; does she have early stage Alzheimer's and capacity (to make decisions?) Do you have a LPA for Health and Welfare? Would she be agreeable to having dentures?
Even if she doesn't have Pension Credit there is the NHS Low Income Scheme which can issue a HC2 certificate for dental costs, if your mum meets the criteria (it used to be if the person has less than c £23,500 in savings).
What I would do in the first instance though is to ask the care home manager for a meeting to share your mum's care plans with you, you can then see what measures they have put in place for her oral hygiene. I would expect to see very detailed care measures documented in that, including the 'minutia' - every step they take - especially as the manager has stated that your mum resists and it 'becomes impossible to do it'.....
The sort of measures I would expect to see, as a minimum, include how are they addressing or trying to overcome your mum's resistance? It often helps to have only a certain, select few staff who help to clean her teeth if she's nervous or fearful (not always possible I know). Have they sought advice from the dentist locally (do they have domiciliary visits to the Home, for instance, by a local Community Dentist). Have they used instead of a normal adult toothbrush, a soft, smaller toothbrush, even a child's toothbrush. Do they use gentle, circular movements rather than up and down. Do they stand to the side of her when helping not directly in front of her. Have they tried non-foaming toothpaste. Have they tried no toothpaste, just water. Does mum have any swallowing difficulties that may be impacting (if so, please consider asking for a SALT (Speech and Language Therapist) assessment. Is mum's mouth checked regularly to ensure there's no infection. Does she have any pain/toothache, ? pain relief. Toothbrushing doesn't have to take place in the bathroom either, mum may be more amenable to it if sat comfortably in her chair. It can be brief to, a minute only for instance.
Finally, is mum eating and drinking well. Good hydration is so important and helps too with oral health; have they considered 'Jelly Drops' if she has poor hydration (not if she has swallowing difficulties).
I don't know how long she's been in the care home but her care plans should be reviewed by the Home at least monthly and as often as needed to reflect any ongoing changes. The date of review should be clearly on the care plan.
If you'd like any advice regarding dentures please ask and I'm happy to share more information about that (my mum's Home lost her teeth but thats a whole other story!!)
With my very warmest and best wishes to you and your mum. Take care.
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PS Care Homes often have 'Champions' - does your mum's Home have an 'Oral Health Champion' (sometimes called a 'Lead') who've usually had extra training and interest in an area of care; they're expected to then share that knowledge with colleague and give more help/training, as needed. If the Home have not I'd be asking 'Why not?'.
The 'Alzheimer's Society' and 'Dementia UK' can also be hugely valuable sources for advice.
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Sorry, one final thought re care and care planning that's just come to mind because of your point that your mum's teeth are falling out one by one ...is your mum on any medications that could affect her jaws/teeth? If she is, please consider getting her a GP appointment. It is Alendronic Acid I am thinking of, prescribed for osteoporosis which can (rarely thankfully) cause ONJ (osteonecrosis of the jaw). It is VERY rare but anyone taking that should be sitting upright for half an hour after taking it with plenty of water, including being supervised to sit upright not just left in bed to fall asleep within minutes after taking it.
Hope I'm allowed to say that Scope, if not my apologies and please delete this post.
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You can ask, but it's unlikely they'll play ball, I've seen the state of current Care Homes, the staff are so overworked/underpaid they leave the residents who aren't bedridden to vegetate in front of the Telly, and don't chat or interact with them.
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Santosha12 thank you so much for your detailed reply. It was very helpful and I've arranged a date to meet the care home manager. I do have LPA for health and no, my mum has no capacity to make her own decisions about anything. She has more than £23k savings so would not qualify for the HC2 certificate.
I will note all of your points and raise the with the care home when I meet them. I don't them any of her meds would have the effect you describe, but will check that.
Once again, thank you so much.
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You are very welcome @cattleandcane23 and I'm pleased you've been able to arrange a meeting with the manager and especially, that you've got LPA - no reason therefore for you to be denied any access to your mum's care plans/health records.
I hope it is not disappointing when you see them; it can be very upsetting to see evidence of a lack of care. I've sadly seen too many 'Care Plans', not worth the paper they're written on, including my mum's which when I then gave my 'straight talking' input/challenge, they were rapidly changed and kept updated, and most importantly, the care then delivered. But I always had to keep my beady eyes on things thereafter.
Either way, it might give you some 'negotiating' power if you decide mum needs to have dentures.
Two short points: if you feel anyone is being disingenuous at your meeting, or economical with the truth - I would ask then to also see mum's 'Daily Care Record' which carer's complete each day. If it's not been written down it's not been done (irrespective of what's in the Care Plan). I would want to see a couple of examples which go back prior to the date any of your concerns were raised.
Finally... my mum let me bath her once a week at the Home which helped me as I could check her skin generally, feet/toe nails etc which can often be areas of neglect and discomfort. I always took her new socks so when she sometimes (rarely) refused a bath I could still check her feet and put foot cream on too which she loved but not everyone does like that.
I had a reasonably good relationship with mum's Home despite my challenges to them and I wouldn't have done anything differently. I'm glad I kept my cool (for the most part 😊). It's a shame that it's sometimes a case of 'those who shout loudest' get the changes and improvements in care that are needed.
With my very best wishes to you and take care of yourself too.
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