Anyone been to the Peto Institute?
I was looking to get advise from anyone who has taken their child/grandchild to the Peto Institute in Hungary? My grandson has cerebral palsy diplegia and I’m looking to do the best for the poor little sole, hopefully to help him walk.
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Hi @Alemoco I can't answer your question, I'm afraid (though somebody, I'm sure, will be able to help) but I just wanted to say hello and welcome you to the community. My last 'encounter' with anything to do with the Peto Institute was a very, very long time ago, so I'm not familiar with their current work.
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Hi @Alemoco, and welcome to the community!
The Peto Institute was mentioned in one of our past discussions, I wonder if @blld would be able to provide any more information on their experiences searching for the right support?0 -
Thanks for the offer, however, I was trying to get some personal feed back from people who have been to the institute,l.0
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I worked with a child many years ago who went to the petro institute. He had . It didn't help him to walk but it did help him to use his muscle spasms to help him get dressed , if that makes sense . Everyone is different .0
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Hi @Alemoco
Welcome to the community.
Over the years I have spoken to numerous parents whose children had attended the Peto Institute.
However, in recent years this seems to be a less common occurrence. I don't think this is any reflection on the Institute itself but probably due to the fact that it is now so much easier to access Conductive Education (the method devised by Peto) in the UK, without the expense and disruption of having to travel to overseas.
Best Wishes
Jean
https://community.scope.org.uk/categories/ask-an-occupational-therapist
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Hi My Daughter in Law is Hungarian she trained at the Peto Institute in Budapest and works in the UK with others who trained there too delivering conductive education to babies and children with cerebral palsy and I have seen the amazing results that they achieve.The Rainbow centre where she works is based in Fareham Hampshire and I know that there are also centres in Liverpool and Birmingham too and probably elsewhere The Rainbow Centre has a Facebook page that you can access to make contact for help and advice I hope this helps you and your family0
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The Peto is brilliant we rely on it unlike the British they train you and it is very low tech so you can continue to do it at home. Our son has exceeded all British expectations thanks to the Peto. Plus it is cheaper to fly out stay there get trained and use their programs than pay for British therapies etc. Hungary is very cheap 45 euros for a morning 8.30 to 12.30 at the Peto. Go for it2
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I visited The Peto Institute several years ago now when I was studying child development. I have mild spastic hemiplegia myself, so I was looking forward to seeing what their work was all about. What I witnessed wasn't anything like I was expecting, and I ended up asking if I could excuse myself and left early.
One room had children sat on the floor having to put their socks on. Some children struggled so much to do that. However, as soon as they managed, they were taken off straight away and they had to start again. Another room had children strapped onto wooden chairs, with backs that looked like rungs of a ladder and being at a 90° angle to the seat. One young child in particular was spasming badly and this meant that their spasms were really painful against the rigid chair and they were obviously in distress, but hey-ho, they were sat on a chair! Another room had other disabled children with visual difficulties sat at tables looking through balloons. Not sure what that was really doing. There were no children in wheelchairs, but as we walked down a corridor, one child literally dragged themselves towards us on crutches. Our guide said that the child was doing "exceptionally well" and they were hoping to have them using sticks soon. So much emphasis on walking, but at what cost to a child's wellbeing (and energy)?
Whether it's different now but when I visited Budapest, it was not a city set up for people with mobility issues back then, so there was a need to be able to get around, but it wasn't what I was expecting, and to be honest I found it extremely distressing. Considering I'd walked into the college with inquisitiveness wondering how I would have faired myself if I had had the opportunity to have conductive therapy as a child. I left grateful that I hadn't.
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Hi im trouble is hope you find the answers you want
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