Fibromyalgia

I have fibromyalgia, it can be really hard trying to explain the pain as the response is usually something like,you look fine to me, I go to my fibro group once a month and I helps me to feel part of life

Local fibro group?? Where do i look for the lical fibro group most people in the know pretend its made up.
So where do you look for one please

See someone says go to your local fibro club but thete arnt any so why keep goinh on about local clubs which dony exist 

I go to the fibro group in glasgow, I find it really good to talk to people with the same issues as myself,I also go to Glasgow disability alliance, they put on information and get together days. 

Every town or city tends to have local groups, The larger the community the more groups available, not that there are ever a lot. Unfortunately there are so many possible groups that you may not have an appropriate one close by and may have to travel to reach one. My town has two such groups. One is for brain damage and the other for learning difficulties. Neither are appropriate for me. I have to travel 20 miles roughly to find a group that I do qualify for which is a general disability group run by a local charity.

The best thing to do is to contact local charities, your GP and charities like MIND. One or all may have some ideas how you can find something suitable. You can always try a google search.

TK

Hi guys. Do i got diagnosed just before Christmas after two years from having hg. Lifes been prettt **** since. Now on lyrica and cocodamol but have asthma and ibs and unknown liver issue so im limited yo lyrica or the drug that combines antidepressant and painkiller. Currently just feel so fed up. I thought getting s diagnosis would put end to most of this. I eork fulltime. Struggle to do so.. but cant afford not to! Also have a two yr old and feel like im usually too tired to be as involved as I'd like. Just need advise on how to manage my life plz x

It took 2.5 years to diagnose mine then was put in contact with back and pain unit at the local hospital they gave 12 months help from learning how different areas of my body actually work so I could try manage my pain. The issue is your body becomes used to the stretching and the pain takes over again I have now been put on deluxitine combo pain med and antidepressants advised by hospital and dyhracodine and gama something or other I sometimes think you can hear me rattle with all the pills one thing I did find out was Ymca do free course of excersize they are trained to help people with health conditions such as fibromyalgia and Taylor it to your needs and you can go at your own pace with others that are in the same situation it might help finding the nearest to you just go on the web and look up free excersize class your doctor can also refer you to a class to also ask him to see a dietitian I’m waiting on appointment to go to one also hope this helps 

You could ask the doctor for a different med I was on Tramadol and several other till they got me on the deluxitine it is for fibro and depression all in one it has helped more than other but any pain relief only takes away 20 to 40% of the pain to make it a bit more bareable but never does anything with flare ups unfortunately not a lot is known about fibromyalgia or how we have got it and work is hard I dropped my hours twice so I could remain in work and it is a game trying to find med to cope and then once you settled with meds your body becomes used to it and the search starts all over again as I have said took 2.5 years to know what was wrong with me and have known. Ow for 2 years but I would love to say it gets easier but in reality it don’t it’s just we get used to it and know what to expect my problem is when I have other health issues I think it is part of the fibro I recently fell and found throu mri I have narrowing of the spine and need opp the locum doctor I saw said it find just your fibro but then started to be sick and was sent to hospital who said I had concussion did a ct scan them mri good job I had concussed myself