My 5 yr old just diagnosed with PVL and CP

Hello @ailsa70and a warm welcome to the community. We are glad to have you with us. It is important for you to know that this is a safe place and that you are among friends here. Whatever experiences you have had or are going through, whatever your troubles are or have been, you will almost certainly find people here who have experienced something similar, who care and can empathise with you. Don't hesitate to talk to us, to ask us questions or to tell us anything about yourself. The better we get to know you and how you feel, the more easily we may find ways to help you.

Warmest best wishes to you,
Richard