Lost my autistic daughter's care package

I dont have any advice Im afraid but I am so very sorry to hear about your problem.  I do hope you find someone who can help you

Hi @CathEss

Good Evening it’s great to meet you today.

I’m so sorry to hear about your current situation.

We have got an “Independent Support Service” here at Scope.

I will forward your post onto them for you & they will hopefully be able to help/advice you.

Please please let me know if I can help you further.

Hi @IndependentSupportServices

Can you please offer me some help & advice with this post????

@CathEss You should definitely have a care package in place. Unfortunately as you’ve now found out it’s definitely a post code lottery in terms of the funding that’s available.
I lived in London for 20 years and had my son 4 years before leaving. He was diagnosed aged 2.
The council there didn’t have much funding available and he actually ended up on the adoption register! They couldn’t provide care and I was a struggling single mum.

We moved down to Dorset and hey presto. An amazing package of care instantly. All the support I needed to keep him at home with me!
They’ve now, 11 years later, given him a place at a residential school for Monday to Fridays (I now have my own disabilities) and that’s on top of his current package of care. 4 nights a month of overnight respite and two days a week in school holidays out with his PAs.

It really is about where you live and how much noise you make.
If your daughter has a social worker meet with them and make it very obvious how you’re struggling to cope.
Email is best as then it’s a solid record that goes on file.
Her age will go against her though. Adult social care isn’t as good as children’s care. 

Hope that helps a little?

Hello @CathEss and welcome to the community.

Autism is one of the few, if not only, disability which has its own law on what local councils and NHS must do. Unfortunately there has also been a lot of cuts in their budgets which can make things difficult and as said it can be a bit of a postcode lottery.

You can find the statutory guidance at https://www.gov.uk/government/publications/adult-autism-strategy-statutory-guidance

Hopefully it will give you some help, if only to know what questions to ask and knowing what they should be doing.

@whistles i hope she does receive it!

@whistles it really depends on what care they need and what they’re able to do independently. This lady says her daughter won’t go out. She clearly needs care. My son has to have 24/7 care and supervision. Everyone is different though.
Yes, I was referring to PIP.
Anyone can be refused if they don’t meet the criteria.
Also, many people are being refused unlawfully. That’s why 68% of appeals are successful when they go to tribunals.

@CathEss You could always get in touch with the National Autistic Society for advice on those specific laws. 
I didn’t even know there were any myself! I may do the same, just so I know what’s what x