Fibromyalgia getting worse

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JulestheBat
JulestheBat Online Community Member Posts: 16 Connected
in Neurological impairments and pain
Hey, 
Im just wondering has anyone elses Fibromyalgia gotten worse? Mine certainly has  :/
Thank you 

Comments

  • EmmaB
    EmmaB Online Community Member Posts: 263 Empowering
    Dear @JulestheBat

    I'm wondering if you've ever come across this website which you may find interesting and/or helpful:  

    http://www.wellwise4me.com

    The co-author of the website recovered from ME after 25 years so she now specialises in supporting the recovery of people with CFS/ME/Fibromyalgia...

    Best wishes.

    Emma
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    I wonder if you had seen these @JulestheBat ?

    Fibromyalgia Action UK is a charity that offers information and support to people with fibromyalgia. If you have any questions about fibromyalgia, call the charity's helpline on 0300 999 3333.

    The charity also has a network of local support groups you may find helpful and a online community, where you can find out about news, events and ongoing research into the condition.

    Another support group you may find useful is UK Fibromyalgia.

  • sarah50
    sarah50 Online Community Member Posts: 119 Empowering
    My Fibro waxes and wanes, it is worse when I have stress and during my cycle.
  • Francis_Calvert
    Francis_Calvert Online Community Member Posts: 9 Connected
    My fibro has certainly got worse since it was diagnosed three years ago. I was up most of the time, now I spend a good proportion of my week in bed. 

  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    Yes my fibro has got worse. 
  • Pamela1509debbie
    Pamela1509debbie Online Community Member Posts: 17 Contributor
    sarah50 said:
    My Fibro waxes and wanes, it is worse when I have stress and during my cycle.

  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    @Pamela1509debbie maybe try a new sport lol? #ifidontlaughiwillcry
  • alli43
    alli43 Online Community Member Posts: 1 Listener
    hi all im new to this iv got fibromyalgia over 2 years been in constant pain no beaks so unfair
  • sarah50
    sarah50 Online Community Member Posts: 119 Empowering
    @alli43 hi ? Yes it feels very unfair doesn't it, I suppose my gran used to say there's plenty worse off than you. While that is definitely true it doesn't stop us from mourning our previous lives. The heatwave we had in the summer was horrific and now I'm dreading the winter. I have had this for at least 5 years and it's hard to stay sane some days, be kind to yourself listen to your body and don't compare the person you are now with the one you were before. Keep battling. X
  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    Definately agree with the above. Look into mindfulness or relaxation therapies as it’s really important to look after your mind too. Best wishes all.
  • sarahluanne
    sarahluanne Online Community Member Posts: 2 Listener
    Hi I've only just recently been diagnosed with this, I went to the doctors over 5 months ago in pain on all my joints and muscles, it's getting worse for me each day, I don't even know if that's possible I feel extremely old before my time and cry alot lifting a saucepan hurts I'm on the waiting list my first app is 28th of January can't believe how long it's taken to be seen can anybody give me any help.on their pain where is is and if they have any tips please anything at all to help? Thanks sarah xx I'm new to this.
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Welcome to the community, @sarahluanne! 

    So sorry to hear about your pain. Do have a look at the links @Sam_Scope shared above:
    Fibromyalgia Action UK is a charity that offers information and support to people with fibromyalgia. If you have any questions about fibromyalgia, call the charity's helpline on 0300 999 3333.

    The charity also has a network of local support groups you may find helpful and a online community, where you can find out about news, events and ongoing research into the condition.

    Another support group you may find useful is UK Fibromyalgia.

    You may also be interested in our chronic pain discussions, where others have shared their own tips and coping mechanisms. I hope today is as kind as possible to you.
  • sarahluanne
    sarahluanne Online Community Member Posts: 2 Listener
    Thank you very much xx

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