My newborn has Spina bifida

Ant36peet
Ant36peet Online Community Member Posts: 1 Listener
edited June 2019 in Families and carers
My nuborn with spina bifida

Comments

  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @Ant36peet welcome to the community! Please let us know if you have any questions :)
  • Adrian_Scope
    Adrian_Scope Posts: 11,750 Online Community Programme Lead
    Hello @Ant36peet, it's great to have you here on the community!

    How old is your little one? 
  • Matt_Scope
    Matt_Scope Scope Posts: 55 Empowering
    I have Spina Bifida too.  I hope everything is going ok!  I work for Navigate parent mentoring service here at scope.  If you feel you would be helped by 6 weeks of support from ourselves and your child has been diagnosed within the past year, feel free to call us on 0808 801 0510.  
  • April2018mom
    April2018mom Posts: 2,863 Championing
    Welcome to the community!

    My son has Spina Bifida too. How old is your son now? If you have any other questions don’t hesitate to ask. Is it okay if I contact you with some more questions? I’m always trying to connect with other local families with a child with Spina Bifida. Most of my friends who have a child with Spina Bifida don’t live in England. 
  • Spinabif1967
    Spinabif1967 Online Community Member Posts: 10 Listener
    I have Spina Bifida. I am 52 years old. Happy to answer any questions you may have!!! 
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Ant36peet and welcome to the community! How are you doing today?
  • antpeet36
    antpeet36 Online Community Member Posts: 5 Listener
    Thanks to you all we went to the dr's Thu and after my wife had an MIR they have seen scoliosis as well.

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