FND

Tinkerbell12
Tinkerbell12 Online Community Member Posts: 2 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Just been diagnosed with F N D 

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Is that Functional neurological disorder (FND)?
  • LaughingLolly
    LaughingLolly Online Community Member Posts: 100 Empowering
    @Tinkerbell12. Welcome. How do you feel about the diagnosis and are you getting enough support?
  • Shepp1958
    Shepp1958 Online Community Member Posts: 5 Listener
    Hi l have had FND for 15 years there is not a lot of help. 
  • susan48
    susan48 Online Community Member Posts: 2,213 Championing
    I have it also, just posted on another thread about FND
  • Shepp1958
    Shepp1958 Online Community Member Posts: 5 Listener
    Hi every one l am starting to go to a FND group next Tuesday  To hopefully find out about FHD. it is held over 6 weeks but its only 1 and half hours long so l don't now how much it will have time for proper time to talk about FND. After 6 weeks that's the end.this is ony help that I have had for 15 years. 
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Shepp1958, this sounds really interesting! I hope you find it beneficial :)
  • underdiagnosed
    underdiagnosed Online Community Member Posts: 31 Contributor
    I've just been diagnosed with FND too. Left sided weakness, dizziness, balance and walking problems, exhaustion and a pile of cardiac symptoms which the consultant couldn't explain. Have you been offered any support? I've had nothing except a separate cardiology appointment which I was waiting for anyway. How do you feel about your diagnosis? I'm not sure what to make of mine as it only explains half my symptoms.
  • dolfrog
    dolfrog Online Community Member Posts: 439 Trailblazing
    you might like to have a look at a recent research paper "Functional neurological disorders: acute presentations and management"
  • underdiagnosed
    underdiagnosed Online Community Member Posts: 31 Contributor
    Hello dolfrog, sorry its taken me so long to reply I've had a pretty bad week for symptoms. Thank you for your suggestion, I found the research paper very interesting and informative. I really appreciate your help.

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