Myasthienia gravis

wilson888
wilson888 Online Community Member Posts: 3 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi my name is wilson I was diagnosed  with myasthenia gravis  almost  2 years ago none  of  the medication  seems to be working has anyone  had similar experience 

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  • wilson888
    wilson888 Online Community Member Posts: 3 Listener
    Thanks cressida, glad to hear you are almost  symptom free, I would  love to stop the steroids, I've just had ivig treatment  3 weeks  ago so fingers crossed  this works 
  • wilson888
    wilson888 Online Community Member Posts: 3 Listener
    Hi  cressida, I was on pyridstominge didn't  agree with me  bn on 150 mg Azathioprine daily for 18 month, prednisolone  for 14 month  was at 100mg every second day  but down to 40 mg every  second day,  I can't  walk very far  my legs get so weak  so do arms and chest muscles, so hopefully  the ivig works

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