Any morphea sufferers who have heard of systemic scleroderma?

Chutchy_50
Chutchy_50 Online Community Member Posts: 2 Listener
edited January 2020 in Everyday life
I suffer from obstructive sleep apnea, spinal cord bleed, morphea and Achilles tendonitis. Married 29 yrs and 3 grown up kids.

I’m on here looking for fellow sufferers, my main concern at the moment is if there are any morphea sufferers who have heard of systemic scleroderma.

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,760 Championing
    Hi @Chutchy_50 - Welcome to the community. Thank you for joining & saying a little about yourself. I don't suffer your disorders, but have tried to look into it. My limited understanding is that morphea is more a localized scleroderma 'just' affecting the skin.
    I'm hoping the following may be helpful, but if you're already under a scleroderma specialist or dermatologist, then please be advised my them, & your GP should always be there to help & advise also. Please see:  https://www.sruk.co.uk/scleroderma/  


  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @Chutchy_50 and welcome to the community! I am aware of systemic Scleroderma, I have Raynaud's disease and I know they can be linked to one another. How are you doing today?
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Chutchy_50 and welcome to the community! How are you today?
  • Chutchy_50
    Chutchy_50 Online Community Member Posts: 2 Listener
    Hi, sorry for late reply. Today is a good day not a great day but okily as I call it, my sleep apnea is still trying to control me, add morphea and a spinal bleed it gets you down hence anxiety and depression ?. I joined this group to find fellow sufferers of some of my conditions, I've yet to find a twin.
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Chutchy_50, great to have you here. :)

    I'm glad today has been okay, it sounds like you have a lot going on at the moment. Please do have a look around and feel free to get involved with discussions.

    If you want something more laid back then the coffee lounge is always a good place to start. :)

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