Looking to meet other parents and make friends , kind of lonely right now and a bit of a hermit !

charlotteh1986
charlotteh1986 Online Community Member Posts: 1 Listener
edited January 2020 in Families and carers
Hello ! My name is Charlotte . I live in Rushden and have three children , a teen girl and two toddlers , one who is three and a half and one two and a half. My three year old has congenital muscular dystrophy and my two year old has recently had Crainiofacial surgery as his skull had fused together too soon and he may have autism . Looking to meet other parents and make friends , kind of lonely right now and a bit of a hermit ! 

Comments

  • emmarenshaw
    emmarenshaw Online Community Member Posts: 697 Empowering
    A warm welcome to the community @charlotteh1986 I’m Emma, one of the Community Champions who are here to help and advise. The community and Scope Team are a lovely bunch so you’ll definitely find lots of support here. Glad to have you with us. Please let me  know if I can help you with anything.
  • chiarieds
    chiarieds Online Community Member Posts: 17,159 Championing
    Hi @charlotteh1986 - Welcome to the community & thank you for joining. You must have had a difficult few years. Most of us here have different disorders &/or have children with them. I hope you'll find lots of understanding & support here from us all.
    Please talk here any time. :)
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @charlotteh1986 and a very warm welcome to the community! It sounds like you have a lot on at the moment.

    Here are the family services that Scope provide. Please use this space to connect with others and get support and guidance when it's needed. :)
  • April2018mom
    April2018mom Posts: 2,863 Championing
    Hello and welcome @charlotteh1986! 

    What do you need help with? 
  • CharlotteG
    CharlotteG Online Community Member Posts: 9 Connected
    Hi @charlotteh1986 I’m also a Charlotte! My daughter is 3 and has cerebral palsy. It is tough sometimes and I do feel lonely sometimes as I only know one other mum who is in a similar situation and she moved away. Have you looked into if you have a carers centre nearby? Ours is full of friendly people and have a couple of sessions a week to drop into for a coffee and a chat. 

    Happy to have a virtual chat and cuppa if you like! 
  • SEast3642
    SEast3642 Online Community Member Posts: 1 Listener
    charlotteh1986 said:
    Hello ! My name is Charlotte . I live in Rushden and have three children , a teen girl and two toddlers , one who is three and a half and one two and a half. My three year old has congenital muscular dystrophy and my two year old has recently had Crainiofacial surgery as his skull had fused together too soon and he may have autism . Looking to meet other parents and make friends , kind of lonely right now and a bit of a hermit ! 
    Hey. My name is Sarah, I live in Milton Keynes, my daughter is 15 months old and also has Congenital Muscular Dystrophy (merosin deficient). I've struggled to find anyone who truly understands what I'm going through. I have friends with kids but they all have typical development and so sometimes it's hard to be around them, watching their children run around together while my daughter just sits and watches! 

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @SEast3642. :)
  • Adrian_Scope
    Adrian_Scope Posts: 11,832 Online Community Programme Lead
    Great to have you with us @SEast3642. :smile:
  • DarwinianZed
    DarwinianZed Online Community Member Posts: 2 Listener
    HI Charlotte, 
    I'm Zoe, I live in Northampton. I have two children, 6 year old daughter and a nearly 3 year old son. My daughter has a number of conditions. I often feel quite lost and overwhelmed by it all. Today I had a referral phone call with Northamptonshire Carers. If you are in the Rushden in Northamptonshire (not heard of one anywhere else) then you might be able to also find some support from them - they run things for parents and have events and such like. :)
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @DarwinianZed! Thank you for sharing this with us. I hope you are able to find out more from Northamptonshire Carers. Please do let us know. :)

    Here are Scope's family services which you might find helpful.
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hello and welcome to @SEast3642 @charlotteh1986 @DarwinianZed Just wanted to say Hi and good to see you are all supporting each other, that's what we do best here 
  • DarwinianZed
    DarwinianZed Online Community Member Posts: 2 Listener
    Chloe_Scope said:
    Welcome to the community @DarwinianZed! Thank you for sharing this with us. I hope you are able to find out more from Northamptonshire Carers. Please do let us know. :)

    Here are Scope's family services which you might find helpful.
    They have sent me out some information on access to legal services and some workshops that they have in Northampton and Kettering - though they are during business hours so might not suit if you have to work. I was kind of hoping that they would have some kind of group meet ups where you can switch off - I did some in Australia (recently moved back to the UK) that were more about chilling out than discussing your kids, we did painting classes and such like and they had on site child minders to keep an eye on your kids while you were there. 

    Are you getting out much and interacting at all? It can be so hard managing everything. I've not really done any socialising or playgroups for my toddler for ages and I could do with it - if I can find the time....
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Thank you for updating us @DarwinianZed. Has the information been helpful?

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