Hi, I’m Lex

LexWood
LexWood Online Community Member Posts: 5 Listener
in Start here and say hello!
My 7month old little boy has an undiagnosed brain condition resulting in developmental delay and spasms. We’ve been told to expect life long learning disabilities so I’m looking to connect with parents on a similar journey. 

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome glad you have joined I am sorry to hear of your sons health issues 

    You may find some members on our parents and carers section or the parents of disabled children 

    There is usually people around to help and just chat 
  • LexWood
    LexWood Online Community Member Posts: 5 Listener
    Thanks so much! 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hello @LexWood and welcome to our online community.  I'm glad you found us!

    Congratulations on the birth of your little boy and I'm sorry to hear he has a brain condition.  How have you found becoming a mum so far?  

    I see you have found our neurological conditions board and I hope our members stories and experiences can offer you some comfort.  As @janer1967 said, our parents and carers section is a useful read too.  

    Have you been able to access much support from the NHS or any other organisations?  I hope you have but please let us know if you need any specific help.
  • chiarieds
    chiarieds Online Community Member Posts: 17,155 Championing
    Hi @LexWood - & welcome to this friendly community. You'll find some really nice people here to chat to any time you want as well. Or for distraction come & meet us in our virtual 'Coffee lounge.' I'm pleased you have joined, & hopefully you will connect with other parents too. :)
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    Hello and welcome to the community @LexWood! It's good to see that you've already been getting involved in a couple of other discussions. How are you and your son getting on today? 

    You might also want to check to see if you're eligible to benefit from Scope's Navigate service, if that's something you'd be interested in:
    Navigate is a national mentoring service, that provides online emotional support for parents and carers of disabled children who are finding out about their child’s additional needs.

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