Hospitál update

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Ibelive2020
Ibelive2020 Online Community Member Posts: 799 Empowering
edited February 2021 in Coffee lounge
Well when hospitál rung me on friday they said they wanted my son on a normál childrens ward for hís sleep study they rung ágain  about half hour ágó and said we need your child in our intensive care unit as from 6.30pm on saturday night bút b4 thát on thursday my son and hís dad need a coronavirus test bricking it is not the word ???

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  • Oxonlady
    Oxonlady Scope Member Posts: 563 Pioneering
    Hi @Ibelive2020.
    This must be worrying for you. 
    Is your son poorly at the moment? I hope not.

    It's a good idea for your son and his Dad to have the Covid test before he's due to have his sleep study at the hospital. 
    I know it must be so difficult for you but at least the doctors aren't just ignoring your son's problems. 

    His photo is lovely, what a fine looking boy!
    Thinking of you, keep us updated if you can. Love and best wishes. 
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi 

    I understand your concerns but at least in intensive care he will be in the best place for one on one care 
  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,874 Championing
    @Ibelive2020 I know it sounds scary your son bring on intensive care to do the sleep study but it is just for them to do the sleep study  and has to be on machines to monitor him which is easier than being in a ward 

    Where we are we have to have covid 19 test before we go into hospital I had to self isolate fo r ten days after my eye operation as well  

    His dad will be with him he will be ok and at least after the study  you will know ?
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @lisathomas50 my son had a sleep study at home years ágó they brought me a lil machine etc i done it myself bút obvs hís health has got worse since then @Oxonlady no my son is not poorly at the moment @janer1967 thanks 
  • Oxonlady
    Oxonlady Scope Member Posts: 563 Pioneering
    Hi @Ibelive2020, it's good to hear that your son is not poorly at the moment but I'm glad that the hospital is taking his sleep apnoea seriously and going ahead with the sleep study in the safest way possible. It sounds as though he'll be in good hands.
    Wishing your little boy all the best. 
    Also sending you a big hug, I'm wondering whether you are getting enough support from anywhere under the circumstances? Take care. 
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @oxonlady thank you for your kind words my son has downs syndrome suspected autism hé alsó has learning difficulties im nőt getting no support from anywhere sending you big húgs back Takecare 
  • Oxonlady
    Oxonlady Scope Member Posts: 563 Pioneering
    Hi @Ibelive2020, when you've got time you might like to ring the Mencap Helpline, they could advise you on what support could be available.
    Unfortunately, this Helpline is unavailable until Thursday of this week, for maintaince work. Please let me know if you'd like their number and email address. 

    You should be able to get some support and assistance from somewhere. Meanwhile, another hug will have to do! 
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @oxonlady thank you éver so much for your kind words help advice and support means alot i shall ring them on thursday (((HUG))) back xx
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    Best wishes to you and the family @Ibelive2020, especially your son :) As the others have said, it's good that the doctors are taking it so seriously too.

    Mencap are a great organisation, so it could be a good idea to get in touch with them. The National Autistic Society also run a number of services that could be helpful to you, including a parent-to-parent emotional support helpline. 

    Let us know how he gets on :)
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @Tori_Scope thank you for kind words 
  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    @Ibelive2020 hope every thing goes ok for your son today, let us know he gets on
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @Sandy_123 thank you hes in hospitál now having test done hes in the intensive care unit how dad is staying over night with hím im anxious im in béd chilling watching tv i wont sleep tonight at áll energy drinks at the ready lol 
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    Now i mean 
  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    @Ibelive2020 bless him, he will be ok at the hospital and he's with his daddy. Try to get some sleep I know it's hard but he will be home tomorrow 
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    @Sandy_123 i poss will bout midnight need tó take my meds about 11.30pm 
  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    @Ibelive2020 that's a good thing then you'll be refreshed for when he comes home
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hope all goes well @Ibelive2020
    :) 
  • Ibelive2020
    Ibelive2020 Online Community Member Posts: 799 Empowering
    Thank you @Ross_Scope

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