Who do I speak to about care for a disabled adult after his carer dies ?

magunra2k
magunra2k Online Community Member Posts: 45 Contributor
edited June 2021 in Families and carers
I have a very disabled adult brother , he is in his early twenties and requires round the clock care , my mothers health is failing, its only a matter of time before she can either no longer look after him or she will not be here to do the job herself anyway. Who do we turn to ? 
I will not be able to look after him, I wont go into details but its simply not an option, his father is estranged and simply not interested and if im honest couldn't be trusted to do the right thing. Since turning 21 social services have essentially washed their hands of him, help from charities has dried up again due to his age and the pandemic. 
So what happens? He doesnt have capacity to make informed choices, he isn't likely to be fit for any independent living (needs constant supervision while awake and has pretty significant medical needs) and would be quite vulnerable and sadly we don't have anyone able to give him the level of care he needs. 
Social adult services seems like the obvious answer but they have been very poor in the past and was kinda hoping there were people on here with more knowledge of where else to look or offer advise about who to speak to and what to say ? any advice would be great

Comments

  • Luna51
    Luna51 Online Community Member Posts: 297 Empowering
    Hello

    Firstly, I really am sorry to hear of your Mother's ill health

    Can I ask has your Mother had a Carer's Assessment? 
    If not, I would advise talking to your local Carers Support on behalf of your Mother, who as your brother's carer is entitled to a Carer's Assessment from her local Council, following on from the assessment, the council may be able to offer practical support (including respite for your brother)
    I am afraid it may be still be a case of contacting Adult Social Services at some point but at least if there are other options, Carers Support can help you find them and talk you through the process of an assessment. 

    Sending my best wishes to you all


  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hello @magunra2k, how are you?

    Apologies for the delay in getting back to you.  I'm sorry this is such a difficult situation, how is your mother keeping?  

    As @Luna51 mentions, a carers assessment is something your mum is entitled to in order to assess what support would help her mental, emotional and physical wellbeing.  I appreciate your past experience with Adult Social Services hasn't been great, and I completely understand your frustration, but please do give that some thought.

    Likewise, a needs assessment to review your brothers needs and what support he would require in the long-term is something that would go towards addressing your concerns. 

    For specialist advice, you can also contact the following organisations:
    Please keep us posted with how you get on and I hope your mum is doing ok.  Take care.
  • magunra2k
    magunra2k Online Community Member Posts: 45 Contributor
    thank you for your comments, i will check those things out, Im going to go out on a limb and say judging by the number of replies this isnt something people generally have to deal with as i suppose more often than not family will step up and take over. 
  • magunra2k
    magunra2k Online Community Member Posts: 45 Contributor
    Its always worth a shot, thank you.
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi there

    You are not on your own these questions have been asked before 

    Family members are not always in a position to provide the high level of care your brother needs and the focus needs to be on funding the care he needs

    You are doing all you can to provide for his future 
  • pollyanna1052
    pollyanna1052 Online Community Member Posts: 2,015 Championing
    Seems to me this is an urgent ...very urgent situation and one which Social Services should be attending to asap.
    I would ring them and ask again...tell them it is vital that a Social Worker takes this case on IMMEDIATELY.

    I once rang them and said I didn't want to be here anymore and they sprang into action.
    Try that tack.
    Good luck
    Pollyxx

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