Hi, my name is Eunomi ! I have FND, and believe research is key

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Eunomi
Eunomi Online Community Member Posts: 1 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Only had symptoms for six months just diagnosed as FND now partially sighted and mobility problems.
as a retired nursing sister a little knowledge  doesn’t do you favours. When it is a condition that even Drs don’t understand. So research is key to keep on top of the latest centres of excellence. And help fellow sufferers.

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  • chiarieds
    chiarieds Online Community Member Posts: 17,155 Championing
    Hi @Eunomi - & welcome to this online community. I can only agree with you (as a long retired physio). It's 'difficult' to say the least when you may know more than your Drs., but I feel your knowledge can pave the way forwards. Research is definitely key in finding the Drs that do understand (I have found that Drs in the USA are way ahead of our UK specialists with my combination of disorders, but this might not be the case with other disorders).
    You seem to share my aim of helping others with a similar disorder to your own, so I welcome you joining, & look forward to you getting involved, & sharing your views on the forum.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    Welcome to the community @Eunomi :) Thanks for joining, and for telling us a bit about yourself. 

    Research is definitely really important so that conditions such as FND can be better understood and treated. How have you found living with FND so far? Has getting the diagnosis helped at all? 

    Just to let you know, I've moved your post into our category for discussions relating to neurological conditions. 
  • atlas47
    atlas47 Online Community Member Posts: 237 Empowering
    Hi @Eunomi

    A very warm welcome.

    Yes research is vital today for discovery of better treatments and our knowledge base.

    I to have an NHS background before retiring, I undertook a research project for the Stroke Association.

    I used  the Cochran Library, as it is one of the best research  tools.

    I have a link. 


    Hope you find it of interest. 

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