I'm struggling with secondary ageing. Anyone know how to disguise your nappys when out in public?

ian27
ian27 Online Community Member Posts: 3 Listener
edited August 2021 in Cerebral Palsy Network
Hi, my name is Ian.  I have left side hemipligia from birth.   Im 47 years old now.   I am deperatly struggling with secondary ageing, sincw my late twenties.  i do not work i just try to exist.  pins needles numbness, enourmous pain just got to put up with it. severe fatigue as well   so mant tablets i take,from  baclofen dyhdrocodeine, gabapentin and now diazapan! great!!!   recently ive put weight on so it makes life more challenging even to walk around the house.  ive been having severe muscle contractions that last for hours, thats why i take diazapan, hopefully under reveiw on monday.

Drooling can be a problem as well making face sore.
Ive been in nappys since my mid thirtys, due to mobility worsening problems with my fingers just not getting there quick enough.
This has been getting worse for me now.  Ive found that with all the muscle relaxants im on, this just increases the problem.I have no chance. This brings me on to the fact that im so self concious if i have to leave the hose because im in full size nappys.  weight gain means ive out grown popper vest to give me more confidence.
Does any have or use different equipment or clothing to try to disguise your' in nappys' when out in public? i do use rubber pants over them to try and stop any embarrassing leaks. Im running out of ideas with this one.!!!
  if anybody needs any advice on my experiences do not hesitate to get in contact.

As for the cp condition ailment bingo, i think ive got the jackpot

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community Feel free to join in or ask any questions 

    I am sorry for all you are going through and hope we can be some support to you 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @ian27

    Welcome to the community, good to see you join us. 

    Sorry to hear of what you've been going through, thank you for telling us about it. This is a very supportive and welcoming community so I'm sure you'll enjoy being here.

    Do you receive any support to manage your conditions from family or a health professional? Such as with daily tasks or mobility? 
  • chiarieds
    chiarieds Online Community Member Posts: 16,792 Championing
    Hi @ian27  - & welcome to the community. Thank you for saying about yourself, tho I'm sorry to read about the problems you have with CP. Have you been offered, or asked for physiotherapy? You might also find the info Scope has put together about some of this helpful. Please see:
    As far as your incontinence problems go, perhaps you might look through the following link to see if you can find something suitable. Please see: https://www.completecareshop.co.uk/daily-living-aids/continence-care-incontinence-aids
  • ian27
    ian27 Online Community Member Posts: 3 Listener
    edited August 2021
    Thanks for the kind words!   AS for incontinence as ive put on weight with speaking incontinence nurse, she has advised to stay in nappies that i use, and buy some dark coloured dungarees that way pads should stay in place
    ian..

  • Richard_Scope
    Richard_Scope Posts: 3,741 Cerebral Palsy Network
    Hi @ian27
    Thanks for posting and how are you? It really seems that you are coping with a lot. There are clothing manufacturers and suppliers such as Incontinence Products for Men | Incontinence Choice in the U.K. and Incontinence Clothing - Shop By Need Adaptive Clothing for Seniors, Disabled & Elderly Care (buckandbuck.com) in the U.S. It might also be worth having a chat with Bladder and Bowel UK
  • ian27
    ian27 Online Community Member Posts: 3 Listener
    having spoken to continence nurse she has suggested buying dark coloured dungarees at least this when i go out i will be confident that my nappy stays in place and doesnt move , plus the nappy absorsbancy means i will not need to change when out. so it sounds like a positive solution to my problem.
    ian..

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