Hi! Waiting for my daughter to have a scan for CP

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Haze90
Haze90 Online Community Member Posts: 3 Listener
edited October 2021 in Cerebral Palsy Network
Hi I'm Haze90 ?

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  • bg844
    bg844 Online Community Member Posts: 3,891 Championing
    Hello and welcome to the community, hope you’re well. Any questions please ask.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hello @Haze90, 

    Welcome to Scope's forum. It is great to see you have joined us. Would you like to tell us more about your motivations for joining Scope's forum and your interests? It would be great to get to know you  :D
  • chiarieds
    chiarieds Online Community Member Posts: 17,090 Championing
    Hi @Haze90 - welcome to this friendly & supportive community. How are you today? :)
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    Welcome to the community @Haze90 :) Did you have a good weekend?

    Please feel free to take a look around the community, and let us know if you need anything at all. 
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community from me too 
  • Haze90
    Haze90 Online Community Member Posts: 3 Listener
    Hi, I've joined this site as I'm waiting for my two year old daughter to have a brain scan to find out if she has cerebral palsy. I'm not sure what I'm meant to be doing in the meantime so was hoping I could find something useful on here
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hi @Haze90, 

    Thanks for reaching out to us. I am wishing you all the best of luck with your daughter's brain scan. Unfortunately, we do not provide medical advice here at Scope. However, we do have a supportive discussion section where you could talk to others about cerebral palsy. If you are interested, you can find it at https://forum.scope.org.uk/categories/physical-impairments-and-cerebral-palsy. I hope this helps but if you have any further questions or anything else we can help you with, please do not hesitate to reach out to us again  :)
  • Richard_Scope
    Richard_Scope Posts: 3,776 Cerebral Palsy Network
    edited October 2021
    Hi @Haze90
    It's really good to meet you and thanks for posting. Your daughter should be having regular contact with physiotherapists and a paediatrician. Have they given you a date for the scan? 

    It's worth noting that the diagnosis of CP is more of a process. There is no stand-alone test for CP. So the medical professionals should be using observations of your daughter alongside any scans. We have lots of information about the Diagnosis Journey and Asking about Your Child's Diagnosis. We also have support groups for parents called Parents Connect and Navigate for when you receive a diagnosis.

    I'm always happy to talk through anything with you.
  • Haze90
    Haze90 Online Community Member Posts: 3 Listener
    Hi, thank you very much for the info ill have a read through.

    We've got a very long 4-6 months to wait for the scan, I think we're waiting for a physio to come round but apart from that I'm not sure what else is going to happen.

    Unfortunately it's already taken a year to get this far.

  • Richard_Scope
    Richard_Scope Posts: 3,776 Cerebral Palsy Network
    Hi @Haze90, unfortunately, the diagnosis journey can be a long one. You are doing all you can at this time and doing a great job too, no doubt!
    I'm happy to advise and support in any way I can. If you click on my name you'll see my Scope email address and you can email me directly or we can always stay in contact here too.
  • WestHam06
    WestHam06 Online Community Member Posts: 1,390 Trailblazing
    Hi @Haze90, 
                        Welcome to the community and thank you for joining us. How are you? I can see that you have already had some great advice, as @Richard_Scope has said, the journey of diagnosis can be a long one and with this it can bring lots of different emotions and these are only natural. Please, if you have any questions, do ask and we will do our best to answer. I have CP and I am happy to try to answer any questions you may have, if I am able too. Thank you. 

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