Hi guys, a question regarding Temporal Lobe Epilepsy

Evixen
Evixen Online Community Member Posts: 2 Listener
edited March 2022 in Housing and independent living

I've been suffering with TLE for around 30 years now yet have only just managed to nail down exactly what it is. I've yet to talk to a doctor regarding this ( now i know what it is, previously they've been regarded as just panic attacks by doctors) but i've a concearn. As well as having TLE and a number of ither issues i'm also the carer of my severly disabled wife and a car is beyond important to both of us. My worry is my driving license, does anyone know of or had experiance of where i may stand and does TLE mean you'll have your driving license taken away because of it?

Comments

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Hi,

    If you're having seizures while you're awake then yes you must report this to DVLA because you will no longer be fit to drive. There's some information in these links.
    You need to be seizure free for at least 12 months before you can reapply for your license.
    You do need to speak to your GP who will also advise you to contact DVLA.


  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @Evixen and welcome to the community. Thanks for your query, I've just moved it over into our independent living category so our members can share their thoughts more easily.

    The epilepsy society has information on driving regulations for people with epilepsy which I hope is useful for you. 

    Gov.uk also has information from the DVLA on what you must do if you've experienced certain types of seizures. 

    If you'd prefer talking everything through with someone, the epilepsy society have a helpline you can call.

    Please do have a look through these, and let me know if you're still unsure of anything, or would like any other support. It can be worrying when we're not sure of something, especially when it has such a big impact on our lives. 

    Keep us updated with how you get on.

    Alex
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community 

    From your post it seems this is a self diagnosis and personally I would get a professional diagnosis and advice regarding your fitness to drive from your gp 
  • happyfella
    happyfella Online Community Member Posts: 519 Empowering
    i had epilepsy for twenty hears. I am now free but monitored. It is important you speak to your doctor and they will run test and put you on the right medication. The trouble with epilepsy and what some people don't know is each time you have an episode it can affect your brain. I suffer from problems because of this. But i would not drive if you are having episodes



  • Evixen
    Evixen Online Community Member Posts: 2 Listener

    Thanks for the replies everyone.


    It's not epilepsy as most people understand it. TLE is like a panic attack coupled with odd sensations such as weird smells and a very distinct feeling of deja vu. I understand that with usual epilepsy driving is dangerous as you totally lose control however TLE doesn't have that and you don't lose control at all (other than the second of Oh pants, not again).

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